Cauda equina syndrome: Affecting the bundle of nerve roots
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I am 62 and I aquired Cauda Equina Syndrome just over one year now! This is the hardest physical/mental disability I have ever encountered. The "Saddle Areas" and "Right Leg Numbness" remain.....and I have just been informed that I will never "Improve!" I am embarrassed to go out in Public such as Restaurants, as I have little control over my embarrassing passing of body gas and/or evacuating my bowel without warning. I wear Mens Security Plastic Underwear in hopes that if an "Accident" happens......I hopefully can contain it and not soil my outer wear. I wear only loose fitting "Sweat Pants" as outerwear due to my condition. Since I am virtually "Paralyzed" in the Equina Area (?) I often must use a Cathedar to assist me, and I have quickly learned that "Wipees" are my best friend! I am a very humorous individual, but I cannot find humor in my condition as No One in my area of SW Arizona has really a clue on how to assist me or give me some advice to make my life improve?
I have Cauda Equina and had a severe reaction this last weekend - huge swollen tongue and throat . A & E say it is an allergy to Ramipril which I've been taking for 18 months. Since an op to address disc compression I've developed CES but prior to that, as soon as I 1st took Ramipril, I had 12 months of Reactive Arthritis which made walking and joint movement extremely painful. Since Monday (3 days ago) without the Ramipril, I feel much more mobile and active despite the CES. Any views anybody? Jacqui Salter
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