Celiac disease - sprue (Celiac disease): A disease of the small intestine
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I suffer with costochondritis and coeliac disease. I'm so ill I can barely function and sometimes I wonder if I'll ever get better again. I've lost a huge amount of weight and this has been a continuous battle for the last 1/2 years. I'm aged 21 yet weigh a mere 6st7. I love food and always have eaten ridiculously big portions for my age and size but as my health has deteriorated so has my appetite. I feel full after small portions of food and when I force meals down it's very hard keeping it down and not feeling very sick. My doctors seem very worried about my health and that they can't seem to find the underlying cause of my pain. I'm currently waiting to see a gastroenterologist however I'm constantly waiting on something else before getting any closer to a diagnosis. Some seem to think its an autoimmune disease, others are worried it could be more serious. Symptoms: Always feel hot and constantly sweat even after a cool shower and when sitting still. However I can get goosebumps on my arms and the top layer of my skin can feel cold even when I'm hot everywhere else. Mental block/fuzziness; can't remember or think of words. Sometimes just stringing sentences is difficult. I seem to be forgetting the whole meaning to words and only being able to talk in a very generic way with very commonly heard phrases/words. Very forgetful, to the point it's embarrassing - some days I constantly repeat myself without any recollection (Wouldn't even know if my partner hadn't told me!) Sometimes my thighs are sore to touch without explanation. I bruise very easily, even by not realising until I suddenly have a very large and painful bruised area. My lymph nodes/glands in throat cause discomfort, every visit I mention it to the Doctors they always say they're inflamed. The skin on the roof of my mouth peels off. It's very noticeable sometimes more than others, I can feel the skin moving when I drink liquids. (However I had an operation on my mouth years ago and have ignored this symptom thinking it may be a result of that - The doctor told me this wasn't possible?) Sudden intense pains in bones/joints i.e. arms, shins, fingers, hands. I can also get a striking pain leading down from my lower back into my right bum cheek. Sudden headaches that are very painful, can last from 30 seconds to 5/10 minutes. Usually when I get one I get a few after. Very sore left side of stomach, almost lined up with belly button. When it's really bad my belly becomes distended so much that my stomach is visibly pushed to the right, out of line. In the past I've also had a problem with kidney and bladder infections. I had a cystoscopy, CT scan and also an ultrasound (- the ultrasound I was told by the clinician showed urinary retention, that she would write this in notes and send to GP for follow up however when I went to my GP they said nothing was in my notes). I was told the next step was to check my bowel which seemed completely useless so I've just been coping with it. I also always need to have a bowel movement. It never feels like they've emptied. I seem to have both diarrhoea and constipation every day. One of the most debilitating thing for me is the chronic fatigue and also the worse insomnia. I've tried ever tip in the book, no matter what I do as a bedtime routine the result is still the same. I was hoping maybe you'd have some thoughts/advice as my doctors have failed to give me the support and help I need. I would just like to Thank you in advance for taking the time to read this. I've struggled on for years now without diagnosis and I'm dying to take back my life. It took me years to be diagnosed with coeliac disease and I really don't want to go through the same long process if it can be helped :( I'm not on any medication, even when I suffer high pain days I try stay clear of painkillers as I don't want to be doing any more damage to myself
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I get terrible heartburn and constipation from losartan. I didn't know why till I found an article by accident that said people who are gluten intolerant should not take arb's. Valsartan was even worse +made my feet swollen. I am going tomorrow to explain all of this
I have been diagnosed as having Dermatitis Herpetiformis (DH), a reaction to Gluten. GI doctor performed test and they all are inconclusive, as were the dermatology tests. All inconclusive including the results of the Celiac blood panel. I have been gluten-free for months now, yet still have DH symptoms. I take Dapsone for DH. I have been insisting that there must be another player besides Gluten since I have have been so strict with my diet. Well, last week I did a lot of research on the Meds that I take. The most suspect of all these drugs came to be LOSARTAN. So, last Friday (03FEB17) I stopped taking LOSARTAN. By Monday I was nearly symptom free.Tuesday I stopped DAPSONE and today - Thursday and still gluten free, all DH symptoms are gone. Today I will discuss this with my dermatologist. I wonder if can take LISINOPRIL now, instead of LOSARTAN. I stopped taking LISINOPRIL because the dry cough caused by it.
My daughter was just diagnosed with Celiac Disease in her blood work and is scheduled for an Endoscopy next week. Is there any possibility to reverse the Disease with a different medication she has been taking levothroxin for 5 years now for Hoshimotos Thyroidities? Does she have Celiac for the rest of her life now?
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