Primary myelofibrosis (Idiopathic myelofibrosis): Primary disorder of the bone marrow
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My mother, 53 years old, was diagnosed to have acute myeloid leukemia (AML-M4Eo, invert (16), CBFbeta-MYH11, FLT3-D835Y) in 2011. She was treated by chemotherapy and has been complete remission until now. Unfortunately, 4 months ago, her blood cells started to be progressively reduced. The doctors examined her with a lot of tests and ruled out the possibilities of AML relapse, aplastic anemia, and MDS. Secondary myelofibrosis was finally determined. Meanwhile, a lump in thymus was also reported, which is likely to be thymoma, the doctor said. But the doctor don't know if thymoma may cause myelofibrosis. We are wondering if the lump should be removed and worrying that the low platelet level can be risky for surgery. So does anyone know if thymoma can cause myelofibrosis or if thymectomy can improve myelofibrosis or anemia? Thanks a lot!
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I'm 62 years old and have Primary Myelofibrosis, diagnosed in 2014. Two days ago I was told by my doctor that I now have emphysema. I don't cough, I don't smoke. And just cant accept this additional diagnosis. I am to go to an pulmonologist to receive further testing and medication. I'm in shock as to what's going with my body so rapidly, (I've lost 46 lbs. in the last year).
My father was diagnosed with myelofibrosis 1 month ago and was prescribed Jakafi. He has been taking the Jakafi for less than 1 month. He is having symptoms/side effects not common with Jakafi or Myelofibrosis. He appears to have symptoms of IBS. - Abdominal discomfort - Insomnia - Loss of appetite - Weight loss - Constipation We're wondering if anyone has taken medicinal THC chocolates while being on Jakafi. My father is 80years old. He is 6'2 and 140 pounds. We are white, non-hispanic.
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