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Would you have Werdnig-hoffmann disease (Spinal muscular atrophy) when you have Ankylosing spondylitis?

Summary: there is no Werdnig-hoffmann disease reported by people with Ankylosing spondylitis yet.

We study people who have Werdnig-hoffmann disease (Spinal muscular atrophy) and Ankylosing spondylitis from FDA and social media. Find out below who they are, other conditions they have and drugs they take.

You are not alone: join a mobile support group for people who have Ankylosing spondylitis and Werdnig-hoffmann disease >>>

 

 

 

 

Ankylosing spondylitis

Ankylosing spondylitis (type of arthritis affecting the spine) can be treated by Humira, Enbrel, Remicade, Sulfasalazine, Celebrex, Indomethacin. (latest reports from 21,242 Ankylosing Spondylitis patients)

Werdnig-hoffmann disease

Werdnig-hoffmann disease (genetic disease with nerve cell & muscle destruction and mobility impairment) has been reported by people with multiple sclerosis, high blood pressure, high blood cholesterol, type 2 diabetes, depression. (latest reports from 110 Werdnig-hoffmann disease patients)

On Jan, 29, 2015: No report is found.

Do you have Ankylosing Spondylitis and Werdnig-hoffmann Disease?

You are not alone! Join a mobile support group:
- support group for people who have Ankylosing spondylitis
- support group for people who have Werdnig-hoffmann Disease

Recent conversations of related support groups:

  • Support group for people who have Ankylosing spondylitis
    Hi everyone!!! I was diagnosed with AS 4 months ago after 9 months of waking up at 3am every morning with Thoracic stiffness and aches. A Rheumatologist diagnosed me and administered Humira. I have been pain free for 4 months.

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More questions for: Ankylosing spondylitis, Werdnig-hoffmann disease

You may be interested at these reviews (Write a review):

  • Pain meds that cause insomnia
    I currently take 7.5 mg of Vicoprofen for pain for my Anklyosing Spondylitis. I have tried Vicodin and Norco previously, but nothing worked as well as the Vicoprofen. I have never had to up my dosage and I am still getting the same level of relief as I was when I first started it over a year and a half ago. I swear by the Vicoprofen and would recommend it to anyone who has any type of related pain, but, there is one downfall. Every time I take my pain meds I get a huge burst of energy. My pain is usually worst at night, so I have no choice but to take it before bed. More times than not it causes me to suffer extreme insomnia, which is no fun. Up until recently I just suffered through it. I went and saw my primary today and told her about the issues and she suggested I try Trazodone to help ease my mind so I can fall asleep easier and faster. I'm really hoping it works because I don't want to have to switch pain meds because they work so well, but I can't go much longer only getting 2-3 hours of sleep during the week.
    I will wrote another review in a week or so regarding my experience taking the Trazodone with the Vicoprofen.
  • Humira: my experience
    I have had some form of arthritis probably since birth. My father and maternal grandfather had some form of arthritis. I began to realize pain in both ankles if I stood or walked too long.

    I began taking many NSAIDs when I was around 22. I've done gold, prednisone (twice), plaquenil, butazoidin, sulfasalazine, etc. My best results came with methotrexate after I got cellulitis in my knee (scratch it while kayaking in the summer, fiberglass boat). It dropped my sed rate from over 100 to 35 or so within a few months. I continued with MTX from 1977 to 2000 when my MD suggested Enbrel and stopping MTX. That was a VERY bad decision. Enbrel appeared to mask the disease for a few years. I had my left MCP replaced in 2004, my right heel debrided in 2010, and both my TMJs replaced in 2012. I strongly believe that if I had kept with the MTX it would have delayed those changes. Additionally, in 2011 I was in a bus crash returning from RAGBRAI. I got knocked out from three to six minutes. I had a nasty concussion that lasted 2+ years. Towards the end of the third year post accident I started exercising more aggressively. After doing several 40, 50, and 60 miles rides, I took a leisurely 50 mile ride around Boston at night. Two days later I had a spinal edema. So much for biking and other active sports! :-(

    I have continued with MTX. Late 2013 my MD increased my MTX to .8/week. I had been taking .6/week. I stopped taking Enbrel and switched to Humira in early 2014. I took it for a few months before my doc and I realized it was not doing any better than Enbrel. I tried Humira for three months but it did not seem to work any better than Enbrel. In early June I stopped Humira and waited a few weeks before I started Otezla. I stopped Oterzla on 9/15/14 because it made me depressed and allowed my morning stiffness to get much worse.

    I started prednisone again from the start of July. By mid-August I told my MD that I was screaming louder than I ever had; my dog was very startled. I stopped it gradually over the next two weeks. Meanwhile, the Otezla made me feel awful.

    My MD is going to get me onto another injectable that I take monthly. I forget its name.

More reviews for: Ankylosing spondylitis, Werdnig-hoffmann disease

Comments from related studies:

  • From this study (1 week ago):

  • started getting red scaly bumps that it on face and hands

    Reply

  • From this study (3 weeks ago):

  • used Humira for 6 months between 6/13 and 1/14. Stopped medication due to adverse side effects. Hypertension began after stopping Humira. No hystory of hypertension until 8/14 to present.

    Reply

  • From this study (1 month ago):

  • 2 days after 1st injection , and 8 days after second injection, very severe nausea and vomiting. Severe for about 3 days then just nausea , but quite unpleasant.

    Reply

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