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Would you have Werdnig-hoffmann disease (Spinal muscular atrophy) when you have Ankylosing spondylitis?





Summary: there is no Werdnig-hoffmann disease reported by people with Ankylosing spondylitis yet.

We study people who have Werdnig-hoffmann disease (Spinal muscular atrophy) and Ankylosing spondylitis from FDA and social media. Find out below who they are, other conditions they have and drugs they take.

You are not alone: join a mobile support group for people who have Ankylosing spondylitis and Werdnig-hoffmann disease >>>

Ankylosing spondylitis

Ankylosing spondylitis (type of arthritis affecting the spine) can be treated by Humira, Enbrel, Remicade, Sulfasalazine, Celebrex, Meloxicam. (latest reports from Ankylosing Spondylitis 20,922 patients)

Werdnig-hoffmann disease

Werdnig-hoffmann disease (genetic disease with nerve cell & muscle destruction and mobility impairment) has been reported by people with high blood pressure, multiple sclerosis, high blood cholesterol, psoriasis, depression.(latest reports from Werdnig-hoffmann disease 110 patients)

On Dec, 8, 2014: No report is found.

Do you have Ankylosing Spondylitis and Werdnig-hoffmann Disease?

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- support group for people who have Ankylosing spondylitis
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  • Humira: my experience
    I have had some form of arthritis probably since birth. My father and maternal grandfather had some form of arthritis. I began to realize pain in both ankles if I stood or walked too long.

    I began taking many NSAIDs when I was around 22. I've done gold, prednisone (twice), plaquenil, butazoidin, sulfasalazine, etc. My best results came with methotrexate after I got cellulitis in my knee (scratch it while kayaking in the summer, fiberglass boat). It dropped my sed rate from over 100 to 35 or so within a few months. I continued with MTX from 1977 to 2000 when my MD suggested Enbrel and stopping MTX. That was a VERY bad decision. Enbrel appeared to mask the disease for a few years. I had my left MCP replaced in 2004, my right heel debrided in 2010, and both my TMJs replaced in 2012. I strongly believe that if I had kept with the MTX it would have delayed those changes. Additionally, in 2011 I was in a bus crash returning from RAGBRAI. I got knocked out from three to six minutes. I had a nasty concussion that lasted 2+ years. Towards the end of the third year post accident I started exercising more aggressively. After doing several 40, 50, and 60 miles rides, I took a leisurely 50 mile ride around Boston at night. Two days later I had a spinal edema. So much for biking and other active sports! :-(

    I have continued with MTX. Late 2013 my MD increased my MTX to .8/week. I had been taking .6/week. I stopped taking Enbrel and switched to Humira in early 2014. I took it for a few months before my doc and I realized it was not doing any better than Enbrel. I tried Humira for three months but it did not seem to work any better than Enbrel. In early June I stopped Humira and waited a few weeks before I started Otezla. I stopped Oterzla on 9/15/14 because it made me depressed and allowed my morning stiffness to get much worse.

    I started prednisone again from the start of July. By mid-August I told my MD that I was screaming louder than I ever had; my dog was very startled. I stopped it gradually over the next two weeks. Meanwhile, the Otezla made me feel awful.

    My MD is going to get me onto another injectable that I take monthly. I forget its name.
    Reply

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