Would you have Werdnig-hoffmann disease (Spinal muscular atrophy) when you have Ankylosing spondylitis?
Summary: there is no Werdnig-hoffmann disease reported by people with Ankylosing spondylitis yet.
We study people who have Werdnig-hoffmann disease (Spinal muscular atrophy) and Ankylosing spondylitis from FDA and social media. Find out below who they are, other conditions they have and drugs they take.
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Ankylosing spondylitis (type of arthritis affecting the spine) can be treated by Humira, Enbrel, Remicade, Sulfasalazine, Celebrex, Indomethacin. (latest reports from 21,242 Ankylosing Spondylitis patients)
Werdnig-hoffmann disease (genetic disease with nerve cell & muscle destruction and mobility impairment) has been reported by people with multiple sclerosis, high blood pressure, high blood cholesterol, type 2 diabetes, depression. (latest reports from 110 Werdnig-hoffmann disease patients)
On Jan, 29, 2015: No report is found.
Do you have Ankylosing Spondylitis and Werdnig-hoffmann Disease?
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- support group for people who have Ankylosing spondylitis
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Recent conversations of related support groups:
- Support group for people who have Ankylosing spondylitis
Hi everyone!!! I was diagnosed with AS 4 months ago after 9 months of waking up at 3am every morning with Thoracic stiffness and aches. A Rheumatologist diagnosed me and administered Humira. I have been pain free for 4 months.
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More questions for: Ankylosing spondylitis, Werdnig-hoffmann disease
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- Pain meds that cause insomnia
I currently take 7.5 mg of Vicoprofen for pain for my Anklyosing Spondylitis. I have tried Vicodin and Norco previously, but nothing worked as well as the Vicoprofen. I have never had to up my dosage and I am still getting the same level of relief as I was when I first started it over a year and a half ago. I swear by the Vicoprofen and would recommend it to anyone who has any type of related pain, but, there is one downfall. Every time I take my pain meds I get a huge burst of energy. My pain is usually worst at night, so I have no choice but to take it before bed. More times than not it causes me to suffer extreme insomnia, which is no fun. Up until recently I just suffered through it. I went and saw my primary today and told her about the issues and she suggested I try Trazodone to help ease my mind so I can fall asleep easier and faster. I'm really hoping it works because I don't want to have to switch pain meds because they work so well, but I can't go much longer only getting 2-3 hours of sleep during the week.
I will wrote another review in a week or so regarding my experience taking the Trazodone with the Vicoprofen.
- Humira: my experience
I have had some form of arthritis probably since birth. My father and maternal grandfather had some form of arthritis. I began to realize pain in both ankles if I stood or walked too long.
I began taking many NSAIDs when I was around 22. I've done gold, prednisone (twice), plaquenil, butazoidin, sulfasalazine, etc. My best results came with methotrexate after I got cellulitis in my knee (scratch it while kayaking in the summer, fiberglass boat). It dropped my sed rate from over 100 to 35 or so within a few months. I continued with MTX from 1977 to 2000 when my MD suggested Enbrel and stopping MTX. That was a VERY bad decision. Enbrel appeared to mask the disease for a few years. I had my left MCP replaced in 2004, my right heel debrided in 2010, and both my TMJs replaced in 2012. I strongly believe that if I had kept with the MTX it would have delayed those changes. Additionally, in 2011 I was in a bus crash returning from RAGBRAI. I got knocked out from three to six minutes. I had a nasty concussion that lasted 2+ years. Towards the end of the third year post accident I started exercising more aggressively. After doing several 40, 50, and 60 miles rides, I took a leisurely 50 mile ride around Boston at night. Two days later I had a spinal edema. So much for biking and other active sports! :-(
I have continued with MTX. Late 2013 my MD increased my MTX to .8/week. I had been taking .6/week. I stopped taking Enbrel and switched to Humira in early 2014. I took it for a few months before my doc and I realized it was not doing any better than Enbrel. I tried Humira for three months but it did not seem to work any better than Enbrel. In early June I stopped Humira and waited a few weeks before I started Otezla. I stopped Oterzla on 9/15/14 because it made me depressed and allowed my morning stiffness to get much worse.
I started prednisone again from the start of July. By mid-August I told my MD that I was screaming louder than I ever had; my dog was very startled. I stopped it gradually over the next two weeks. Meanwhile, the Otezla made me feel awful.
My MD is going to get me onto another injectable that I take monthly. I forget its name.
More reviews for: Ankylosing spondylitis, Werdnig-hoffmann disease
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used Humira for 6 months between 6/13 and 1/14. Stopped medication due to adverse side effects. Hypertension began after stopping Humira. No hystory of hypertension until 8/14 to present.
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2 days after 1st injection , and 8 days after second injection, very severe nausea and vomiting. Severe for about 3 days then just nausea , but quite unpleasant.
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