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Related topic: Ehlers-danlos syndrome, Dyspnoea

Review: could Ehlers-danlos syndrome cause Dyspnoea?

Summary: Dyspnoea could be caused by Ehlers-danlos syndrome, especially for people who are female, 30-39 old, also have Migraine, and take Savella.

We study 51 people who have Ehlers-danlos syndrome from FDA and social media. Find out below who they are, other conditions they have and drugs they take.

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Dyspnoea

Dyspnoea (difficult or laboured respiration) (latest reports from 1,327,421 patients) has been reported by people with high blood pressure, asthma, rheumatoid arthritis, pain, chronic obstructive pulmonary disease.

On Apr, 14, 2014: 51 people who have ehlers-danlos syndrome are studied. Among them, 1 (1.96%) has Dyspnoea. They amount to 0.00% of all the 1,341,900 people who have Dyspnoea on eHealthMe.

Trend of Dyspnoea in ehlers-danlos syndrome reports

Gender of people who have ehlers-danlos syndrome and experienced Dyspnoea * :

FemaleMale
Dyspnoea100.00%0.00%

Age of people who have ehlers-danlos syndrome and experienced Dyspnoea * :

Dyspnoea0.000.000.000.000.000.000.000.00
n/a

Severity of the symptom * :

n/a

Top co-existing conditions for these people * :

  1. Migraine (1 people, 100.00%)

Most common drugs used by these people * :

  1. Savella (1 people, 100.00%)
  2. Maxalt-mlt (1 people, 100.00%)

* Approximation only. Some reports may have incomplete information.

How to use the study: print a copy of the study and bring it to your health teams to ensure drug risks and benefits are fully discussed and understood.

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Common treatments for Ehlers-danlos Syndrome and their efficacy:

Could your drug cause it?

Comments from related studies:

  • From this study (2 days ago):

  • This drug has ruined my life. I am only 26 years old and I am rapidly gaining weight, am going through premature menopause, and cannot have children. All this has happened since I have GONE OFF THE DRUG. Do not take this drug.

    Reply

    Susan on Apr, 22, 2014:

    Sorry to hear about this I am goin through it as we'll just found out after having tests done although I do have to children ages 4 and 10 I have only ever had a break from this deppo when I found out I was pregnant with my 2nd child so was on deppo for a good few yrs but lately I was gtn bad mood swings and horrible night sweats after 6 months they have says I'm goin through premature ovarian failure and I've been put on hormOne replacement treatment. I was really shocked as I've just turned 27

    Reply

  • From this study (4 days ago):

  • Asthma seems mostly under good control.
    Taking flecainide for pVC's ...frequent. 10,000 daily.and LBBB and reduced ejection to 47% .

    Reply

  • From this study (6 days ago):

  • Sarcoidosis caused complete heart block. Pacemaker implanted in December 2009 but for the past two years I have had palpitations caused by around 3.7 million ectopic heartbeats per year.

    Sarcoidosis also in lungs and eyes. Extended use of Pred Forte caused development of cataracts, one of which has been removed and I am awaiting the second operation.

    Breathlessness is caused by lack of oxygen entering the bloodstream and my ongoing heart problems

    Rarely able to sleep properly due to pain, sleeping for about 20 minutes at a time when I become so exhausted that the pain can't keep me awake

    Muscle and joint pain have made me weak and clumsy.Pain is felt all over, from head to toes along with muscle cramps and intense burning sensation to skin on lower legs.

    ACE levels fluctuate but average 110 - 150.

    Blood pressure on average is 150 / 78 - no treatment given

    I also take Nefopam Hydrochloride (Acupan) for pain but this drug is not on the list.

    Immobility, fatigue and constant pain have left me very depressed ad harbouring thoughts of suicide. My 15 year old granddaughter has lived with me since the death of my daughter 11 years ago and it is my hope that I will live long enough to see her settled in college and independent after which the only thing I have to look forward to is to end my own suffering.

    Reply

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