Would you have Sjogrens (Sjogren syndrome) when you have Narcolepsy?
Summary: Sjogrens is reported only by a few people with Narcolepsy.
We study 2 people who have Sjogrens (Sjogren syndrome) and Narcolepsy from FDA and social media. Find out below who they are, other conditions they have and drugs they take.
You are not alone: join a mobile support group for people who have Narcolepsy and Sjogrens >>>
Narcolepsy (brain's inability to regulate sleep-wake cycles normally) can be treated by Provigil, Nuvigil, Xyrem, Modafinil, Dexedrine, Ritalin. (latest reports from 4,402 Narcolepsy patients)
Sjogrens (a disease that causes dryness in the mouth and eyes) has been reported by people with osteoporosis, rheumatoid arthritis, osteopenia, multiple sclerosis, high blood pressure. (latest reports from 2,635 Sjogrens patients)
On Jan, 31, 2015: 2 people who have narcolepsy and Sjogrens are studied.
Gender of people who have narcolepsy and experienced Sjogrens * :
Age of people who have narcolepsy and experienced Sjogrens * :
Severity of the symptom * :
Top co-existing conditions for these people * :
- Sarcoidosis (1 people, 50.00%)
Most common drugs used by these people * :
- Xyrem (2 people, 100.00%)
- Ativan (2 people, 100.00%)
- Aspirin (2 people, 100.00%)
- Multivitamin (2 people, 100.00%)
- Dulcolax (2 people, 100.00%)
- Lexapro (2 people, 100.00%)
- Lortab (2 people, 100.00%)
- Singulair (2 people, 100.00%)
- Provigil (2 people, 100.00%)
- Plaquenil (2 people, 100.00%)
* Approximation only. Some reports may have incomplete information.
How to use the study: print a copy of the study and bring it to your health teams to ensure drug risks and benefits are fully discussed and understood.
Do you have Narcolepsy and Sjogrens?
You are not alone! Join a mobile support group:
- support group for people who have Sjogrens and Narcolepsy
- support group for people who have Narcolepsy
Could your drug cause:
Other conditions that could cause:
Can you answer these questions (Ask a question):
- taking laquinal form mixed connective tissue disoder (ra, sojgins & scleroderma) but have ganed alot of weight. could i safely take phertermin appetite suppressent for a short term (6 months or less
Taking Plaquenil for Mixed Connective Tissue Disorder (RA, Sojogrens & Scleroderma) but I have gained a lot of weight. Could I safely take Phentermine appetite suppressant for a short term (6 months or less)?
- Is there a connection between narcolepsy and neurofibromatosis
Hi ,My name is Pauline Newman I live in Adelaide,South Australia,I have NF1 & NF2,I am 5th generation carrier of the NF Gene,I have literally thousands of lumps,bumps & café au-lait marks all over my body.My question is are NF1 & 2,cause Narcolepsy or EDS, I have also recently had an MRI & ultra sound which has shown up a Plexiform NF, I am in constant pain because of scoliosis,and I am Totally wheelchair reliant, I have 2 Harrington rods alongside my spine & have had a T4-L4 fusion & T12 osteotomy, As a result of my spinal condition I have Rhuematoind Arthritis,fibromyalgia and low vitamin D levels & iron deficiency.Is it possible that these medical conditions are all linked to NF?
20A Shearer Ave Seacombe Gardens.. SA 5047
- How far apart can xyrem and flexeril be taken? (1 answer)
How far apart can Xyrem and flexeril be taken? 1st time trying flexeril for a back ache.
- Hypopituitarism and fever
I read your article on testing of hypopituitarisum and fever - http://www.ehealthme.com/cs/hypopituitarism/fever - Twice now in the past 2 years I have broken out in a great deal of pain accompanied by a high temperature of about 102. I was told since I take cortef, that I should not get fevers - but now I read that my health issues could be causing me fevers. These fevers have lasted for about 3 days. Doctors are baffled as to what causes the fevers - although your report makes it a bit clearer. The question is now, what do I do when I get these high fevers and aches which debilitate me for a week or better?
- Can narcolepsy cause eye spasms? (1 answer)
I was diagnosed with saccadic eye movement disorder 7 years ago and they could never figure out how to help me... October of 2012 I was diagnosed with Narcolepsy... My eye spasms started getting much worse 2 years ago and continue to get worse. I would like to figure out if I actually have an eye disorder or if it is my narcolepsy that has caused my eye spasms. If it is my narcolepsy, how do I make the spasms stop? I want to be able to read and study in college without having to worry about getting a migraine or having my eyes spasm... Please Help Me :(
More questions for: Narcolepsy, Sjogrens
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Began taking escitalopram one month ago. Having narcoleptic type sleep incidents as well as unwanted suicidal thoughts. Legs and arms also go out. Sleeping up to thirteen or more hours per day.
- Had nms in 2005, will trileptal increase chance of recurrence?
In 2005 I had NMS, which was not detected by my drs for 4 months. I'd been on Lexapro & Seroquel for 2 yrs, but was weaned from Lexapro & placed on Lamictal 3/05. Began getting low-grade fevers, which I was told were not caused by the Lamictal. I quit taking it anyway, fevers (along with uncontrollable shivering) continued & got higher. By 5/05 my temps were reaching 105 deg F. Husband said I became combative, refused to go to hospital. Early June/05 he came home to find me wrapped in blankets, with a temp over 105 F. He tried to place me in a tub of cold water, said I was rigid & screamed when he tried to move me. I was in the tub, speaking "in tongues" (his description, I have no memory of this). He called 911, took me to hospital. I woke, no idea where I was or why. After a lumbar puncture & 2 days in ICU I went home. The fevers continued...2 weeks later he came home to find me wrapped in sheets, towels, blankets, with the heat on full (it was in the 90's outside) he called ambulance again. I awoke to find myself under an ice blanket with nurses pushing large vials of dantrolene into both arms, several liters. Another LP, a stint in ICU...this time they told me it was NMS. The dr who dxd me said he was surprised I was alive, & not a vegetable, as my temp had peaked at 109 deg F. I suffered brain damage; short-term memory loss, brain can't control my body temp, my blood pressure went up. An arteriogram showed completely healthy heart & arteries, no plaque at all. I lost all body fat as well as some muscle mass. The fevers continued even after stopping the Seroquel. I visited my PCP for a checkup in 9/05, temp was normal. I started shuddering, my temp went up a full degree every 5 minutes. PCP admitted me to ER, my heart rate was over 272 B/M; they stopped my heart 3 times to "reset" it, which didn't work. I spent 3 days in hospital. Several months later my P doc tried me on Lamictal alone; I got Stevens-Johnson syndrome. I stopped the drug as soon as the signs appeared. I've been untreated, except for Neurontin & Primidone, until my manic episodes became unlivable. 3 weeks ago I went 8 days with no sleep, became psychotic. My P doc gave me Trileptal, which has evened my moods, but I've been getting low-grade fevers (highest was 103.6). Would having had NMS in the past make me more prone to falling to it again with the Trileptal? It's the only new med I've taken in over a year.
- Narcolepsy-cataplexy and epilepsy after taking tamiflu (1 response)
Sorry for my unperfect English : ) I'm french.
I suddenly declared an "atypic" Narcolepsy-cataplexy after taking two pills of TAMIFLU in 2007. My husband was ill, and our family doctor recommanded me and my baby to take the same medecine otherwise we should also catch the "bad" flu.
I took two pills of TAMIFLU and fell down at my office, unanimated but not unconscious, unable to move, prisonner in my own body. Till this day, I couldn't help falling down 10 to 15 Times a day, being sleepy all the day long, being paralysed when I Wake up in the morning. Several nights I also experimented tonic-clonic epilepsy seizures and insomnia. My life would never be the same till then.
I was misdiagnotised the first time, since I didn't carry the "HLA specific type" confirming a typical narcolepsy. But the cataplexy attacks were so specifically that I obtained to be recieved in a sleep-center to check my sleepness architecture. The results were shortly confirming the diagnosis of Narcolpesy-Cataplexy in its nontypical form, "secondary type" as in rare cases as following a trauma, and also the diagnostics of frontal epilepsy.
I precise I did NEVER had seizure or epilepsy crises before the day I fell down after taking TAMILFU.
At the RMI, I was detected an "intrasellar arachnoidocele" which could explain the survenience of my symptoms. It's sudden appearance might have been a side effect of TAMIFLU which is now known to rich (oseltamivir substance)the blood-brain barrier and cause irreversible dammages to brain.
As a conclusion, TAMIFLU appeared to be responsable of a "medecinal intoxication" causing the narcolepsy-cataplexy I suddenly suffer since then.
Several Years after, we hear about narcolepsy cases caused by the massive H1N1 vaccinations... But what about me, am I the only one case declared by TAMIFLU and its molecule oseltamivir ?
- Idiopathic insomnolence (1 response)
In 1997 I was diagnosed with Narcolepsy with an intolerance to Dexamp(hetamine) tablets.
After 3 years of nose operations, and sleep tests to remove other potential issues (lung problems or apnoea) I have finally been re-diagnosed (2013) with idiopathic insomnolence.
Modaphinil caused a reaction of insane nausea, pains behind the eyes, dizzy spells, with no real change in blood pressure.
Dexamphetamine was erratic (on recent retrial) with extremes causing dizzy spells and slow progressive drop in BP over 3 weeks from average 125/75 to 105/60. Occasionally it would wake my body up but my brain would be slow to follow, and the conflict would take me to the cleaners for the next two days.
I was diagnosed with IgAN in 2004, and have progressive idiopathic neuropathy in my feet since 2011.
The sleep specialist wants me to try Klacid (clarithromycin) as it has reportedly caused insomnia on a regular basis. I've not yet agreed.
That's me in a nutshell.
To many idiopathics and drug rejections.
Somebody has not got their finger on the pulse, but no idea who yet.
Jus thought I'd throw this out there in case anyone else is having difficulties aswell.
More reviews for: Narcolepsy, Sjogrens
Comments from related studies:
From this study (3 days ago):
When I started to eat thoose pilds of modafinil, nothing happens, but one monts later a bad breath starting to butter me when speak with other people, they offer me bubble gommer, candies, etc... I asked my parents and girlfriend if i had a bad breath, but always said no! Now i use other drug that another psichiatrist gave me to think that i don´t have halitosis problem.If the specialist could told me that this will happen, i was never take modafinil pilds, hear in Mexico you can founded with the name of medioadal, obviously with prescription medication of a doctor or psichiatrist.
Sorry for my ortographic mistakes, i´m learning english...
From this study (6 days ago):
No relief even after discontinuing all medications.
From this study (2 months ago):
this has been going on for a year and a half where both of my hands and arms are completely useless for at least an hour a day. the past two weeks it has spread to my toes, feet, and legs, and now lasting 3 hours a day.
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