Would you have Splenomegalic polycythemia (Polycythemia vera) when you have Sarcoidosis?
Summary: there is no Splenomegalic polycythemia reported by people with Sarcoidosis yet.
We study people who have Splenomegalic polycythemia (Polycythemia vera) and Sarcoidosis from FDA and social media. Find out below who they are, other conditions they have and drugs they take.
You are not alone: join a mobile support group for people who have Sarcoidosis and Splenomegalic polycythemia >>>
Sarcoidosis (an inflammatory disease that affects multiple organs in the body, but mostly the lungs and lymph glands) can be treated by Prednisone, Methotrexate Sodium, Prednisolone, Plaquenil, Methotrexate. (latest reports from 3,149 Sarcoidosis patients)
Splenomegalic polycythemia (a condition in which there is excessive production of red blood cells due to enlarged spleen) has been reported by people with high blood pressure, osteoporosis, depression, pain, rheumatoid arthritis. (latest reports from 619 Splenomegalic polycythemia patients)
On Jan, 18, 2015: No report is found.
Do you have Sarcoidosis and Splenomegalic Polycythemia?
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- Support group for people who have Sarcoidosis
Hello, Thank you for helping me.i have had sarcoid since 1977. its now multi organ. I had a double mastectomy 6 years ago and sarcoid was through both my breasts. I have mediastinal lymadenopathy and on methotrexate. I take lorazepam nit for bladder problems as it shows on my profile, but spinal cramps.
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- Is it dangerous to take nitrofurantoin if diagnosed with sarcoidosis
UTI urinary frequency has non productive irritating cough and sarcoidosis associated with arthritis.
- My mom is 80 years old and has advance osteoporosis here bones are very brittle and she has fracture several vertabrate the doctor wants to put her on forteo but suffers from polythemia.
Does anyone currently suffer from Polycythemia and is on Forteo?
- How do i know if i have sarcoidosis?
I've had sarcoidosis in my lungs. I've also had an eye infection, skin lesions, facial palsy, and currently have tinnitus in both ears. I also have carcinoma in situ in my bladder.
- Can curcumin c3 complex cause very dry mouth?
I have been takingall the above drugs since being diagnosed with Sarcoidosis in 1998-99. The only variation is prednisone which I take only when I have a flare. Itook my first Curcumin C3 Complex capsule 3 days ago. 500mg. I decided to start with one a day for awhile. After a few hours I had the dryestmouthever! Both days it has impimproved considerably by the end of the 24hours. A couple hours after takingit this morning mymouth is horribly dry again. It has to be the Curcumin since nothing else has changed for years. Anyone else with this problem? The reason I amtaking it is a couple of years ago my gastrodr wanted me to take it for my GERD but I didn't want to. But the other day I read that it helps with joint pain which I have badly so thought I'd give it a try for both reasons.
- Are there any adverse interactions between hydrea and diamoxx?
I have polycythemia Vera and have been on Hydrea for over seven years. I hike up 8,000' to 14,000' mountains and until two years ago did not have any problems. But after menopause and a short stint of HRT that included testosterone, I started to experience symptoms that included mild headaches, dizziness and swelling (edema) in my abdominal area, even after stopping the HRT. Some of this may be due to poor hydration but the swelling of up to three inches is uncomfortable and takes 24 hours to subside after return to sea level. I love hiking and snowshoeing so much and want to try Diamoxx to see if I can better manage the symptoms and continue to hike. But with polycythemia one can never be too careful about drug interactions... Can anyone assist?
More questions for: Sarcoidosis, Splenomegalic polycythemia
More reviews for: Sarcoidosis, Splenomegalic polycythemia
Comments from related studies:
From this study (3 weeks ago):
Since taking my last methotrexate injection I have had gastritis/pancreatitis. Previously had ercp twice.
From this study (4 months ago):
The symtoms are infrequent. Alwayd severe if cooked beans or milk is taken especially in the night.
From this study (5 months ago):
Sarcoidosis caused complete heart block. Pacemaker implanted in December 2009 but for the past two years I have had palpitations caused by around 3.7 million ectopic heartbeats per year.
Sarcoidosis also in lungs and eyes. Extended use of Pred Forte caused development of cataracts, one of which has been removed and I am awaiting the second operation.
Breathlessness is caused by lack of oxygen entering the bloodstream and my ongoing heart problems
Rarely able to sleep properly due to pain, sleeping for about 20 minutes at a time when I become so exhausted that the pain can't keep me awake
Muscle and joint pain have made me weak and clumsy.Pain is felt all over, from head to toes along with muscle cramps and intense burning sensation to skin on lower legs.
ACE levels fluctuate but average 110 - 150.
Blood pressure on average is 150 / 78 - no treatment given
I also take Nefopam Hydrochloride (Acupan) for pain but this drug is not on the list.
Immobility, fatigue and constant pain have left me very depressed ad harbouring thoughts of suicide. My 15 year old granddaughter has lived with me since the death of my daughter 11 years ago and it is my hope that I will live long enough to see her settled in college and independent after which the only thing I have to look forward to is to end my own suffering.
IchikireiLV on Sep, 5, 2014:
I was so sorry to read your comment, but glad I encountered it. PLEASE PLEASE don't ever think of taking your own life! I know what it is like to suffer. I injured myself 7 yrs ago, got a spinal implant that failed, compressed my spine, corroded and left me with heavy metal toxicity which caused adrenal failure, hypothyroid and many other serious health conditions. I have lived a life of chronic pain, fatigue and difficulty, so I know exactly where you are coming from! Some days I am so weak and have so much pain that I cannot get out of bed or care for myself. At times I try to puch myself to do the simplest things and my body is so frail I can barely catch my breath and feel like I gave to crawl back to my bed, dripping in sweat, dehydrated and defeated... but I still go on in hopes that there will be a better day. I ENCOURAGE YOU TO SEE A PAIN MANAGEMENT DR. MONTHLY FOR MEDICATIONS TO CONTROL YOUR PAIN! This alone will improve your daily life immensely! Pain will make you depressed! I also use Savella. It helps with Neuropathy pain AND DEPRESSION. Dont give up because doctors arent helping you enough. MAKE THEM! Its unacceptable that they are not following thru but I myself have experienced this many times.. Find another better, more compassionate Dr. Read Dr. reviews online, start with a primary care family dr, a pain dr and a rhuematologist for Sarcoidosis... make sure the Dr. is experienced with Sarcoidosis.. if not, find another one. I hope this helps you and gives you a direction to follow. Once your pain is controlled, things will be a lot better. Good luck and wishes of health and most of all HOPE and HAPPINESS 😄😄
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