Review: could Lupron depot cause Benign intracranial hypertension (Pseudotumor cerebri)?
Summary: Benign intracranial hypertension is found among people who take Lupron depot, especially for people who are female, 20-29 old, have been taking the drug for 1 - 6 months, also take medication Lupron depot-3, and have Endometriosis.
We study 9,058 people who have side effects while taking Lupron depot from FDA and social media. Among them, 14 have Benign intracranial hypertension. Find out below who they are, when they have Benign intracranial hypertension and more.
You are not alone: join a mobile support group for people who take Lupron depot and have Benign intracranial hypertension >>>
Lupron depot has active ingredients of leuprolide acetate. It is often used in endometriosis. (latest outcomes from 6,966 Lupron depot users)
Benign intracranial hypertension
Benign intracranial hypertension (benign intracranial hypertension (bih) is a headache syndrome) has been reported by people with acne, birth control, attention deficit hyperactivity disorder, pain, depression. (latest reports from 1,835 Benign intracranial hypertension patients)
On Jan, 15, 2015: 9,058 people reported to have side effects when taking Lupron depot. Among them, 14 people (0.15%) have Benign Intracranial Hypertension.
Time on Lupron depot when people have Benign intracranial hypertension * :
|< 1 month||1 - 6 months||6 - 12 months||1 - 2 years||2 - 5 years||5 - 10 years||10+ years |
|Benign intracranial hypertension||25.00%||75.00%||0.00%||0.00%||0.00%||0.00%||0.00% |
Age of people who have Benign intracranial hypertension when taking Lupron depot * :
|Benign intracranial hypertension||0.00%||0.00%||5.56%||50.00%||33.33%||11.11%||0.00%||0.00% |
Severity of Benign intracranial hypertension when taking Lupron depot ** :
|least||moderate||severe||most severe |
|Benign intracranial hypertension||0.00%||0.00%||0.00%||100.00% |
How people recovered from Benign intracranial hypertension ** :
|while on the drug||after off the drug||not yet |
|Benign intracranial hypertension||0.00%||0.00%||100.00% |
Top conditions involved for these people * :
- Endometriosis (6 people, 42.86%)
- Pelvic pain (3 people, 21.43%)
- Vitamin supplementation (2 people, 14.29%)
- Hypertension (2 people, 14.29%)
- Assisted fertilisation (1 people, 7.14%)
Top co-used drugs for these people * :
- Lupron depot-3 (11 people, 78.57%)
- Ergocalciferol (2 people, 14.29%)
- Montelukast (2 people, 14.29%)
- One-a-day women's (2 people, 14.29%)
- Femhrt (2 people, 14.29%)
* Approximation only. Some reports may have incomplete information.
** Reports from social media are used.
How to use the study: print a copy of the study and bring it to your health teams to ensure drug risks and benefits are fully discussed and understood.
Do you have Benign Intracranial Hypertension while taking Lupron Depot?
You are not alone! Join a mobile support group:
- support group for people who take Lupron depot and have Benign Intracranial Hypertension
- support group for people who take Lupron depot
- support group for people who have Benign Intracranial Hypertension
Drugs in real world that are associated with:
Could your condition cause:
Can you answer these questions (Ask a question):
- Your experience with eligard
I started out with Firmagon in April 2013. They decided that I could be alergic to it after my belly swelled up and turned red. Switched to Eligard January 2014. The eligard causes more unwanted symptoms than the Firmagon.
I would like to just stop taking this drug even though it has reduced my PSA to under 1 and the testosterone is where they like to see it. I am doing a number of natural things involving the diet. Many people believe that this can work to bring about a remission. Of course, while I am taking the drug to lower these markers, I can not know what the natural protocols are doing with the cancer. The only way to know this is to go off the medication intermitantly or for good.
If anyone has been in this situation and stopped the HDT, I would like to hear your experience.
- I am a 38 yr old who was treated for endometriosis with 6 mos. of lupron. my body hasn't been the same since, 5 years later. is there a link between lupron & thyroid disfunction & infertility? (1 answer)
I was healthy and active before going on Lupron (against my better judgement). During the time I was on it I experienced hot flashes, night sweats, waking up to got to bathroom, frequent urination, flaking of scalp skin, loss of hair, weight gain, and a foot injury that came out of nowhere. It's been 5 years since I've been on it and my symptoms have continued. I am now married and have been trying to get pregnant for 9 months without luck. We are being tested and the first results came back from blood work stating I have subclinical hypothyroidism and my FSH levels are at 15 (they should be no higher than 9ish for my age - 19 is post menopause). My periods which had always been regular, now occur anywhere from 3 to 5 weeks apart and the flow is different. My joints are in constant pain regardless of injections and therapy without any sustained injury and in the last 2 1/2 years I have shrunk 3/4"! I know there have been others who have experienced similar issues after using this drug. Have there been any direct links to it and thyroid or pituitary gland malfunctions - permanently? I have also heard there was/is/or is going to be a law suit against this drug. Any info or direction would be most helpful! Thanks!
- Lupron and rheumatoid arthritis (1 answer)
I took Lupron off and on for many years due to a medical condition and now my joints hurt so bad and lock and pop so bad. I took Lupron injections for a total of 24 months, could this be the cause if such pain in my joints and if so what can I do to prevent it from getting worse? And chronic breathing issues. I have to take ad air now and lots and lots of NSAIDs. Steroids seem to help My joint pain , breathing and digestive issues, and memory issues.
Sorry had to edit my email address left out information and the length of time for injections was 24 months nit two, 4 - 6 month intramuscular injections.
- Will joint pain, night sweats and hot flashes go way? (1 answer)
I have joint pain in finger joints, wrists, elbows, severe in hips, ankles, feet, knees. I also have night sweats, hot flashes, stiffness and can't sleep long. I had three one month Lupron Depot shots followed by a three month dosage. The symptoms got really bad after the three month dosage. Will these symptoms subside and how long does it usually take?
- I'm experiencing lack of strength and stamina while on luprondepot. i've had hdr with ebrt and september will be 6 mo. of lupron. i'm supposed to get 2 years of the drug but feel lousy. any thoughts?
I'd like to stop taking Lupron Depot at the end of the 6 month period and forgo the entire 2 years of shots. My quality of life has greatly diminished since it's a struggle to do even mild exercise, and I'm concerned about heart complications and bone fractures while on the drug. I've been an active, fit guy for a 77-year old up until now. Anyone in my shoes who's had high density and external beam radiation combined with Lupron depot?
More questions for: Lupron depot, Benign intracranial hypertension
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Took minocycline for 3 months for treatment of my acne . I then suffer with bleeds behind my eyes causes by iih . Everyone was quick to jump to the fact that it was minocycline that caused the iih and that doctors do know if the alarming rate of this condition happening in patients being treated for acne , yet no one will take the blame for it ! Very upset about it all as in now basically disabled !
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Comments from related studies:
From this study (4 months ago):
within the last six months I have experienced achy joints and muscles. My scalp breaks out in a rash I have itchy spots on chest and upper abdomen. My B-12 is low and white blood count was low. I had one doctor treat me for one month for Lyme disease with no help, and I have a lot of the side effects from Lupron
dmitche3 on Sep, 17, 2014:
Have you had your thyroid levels checked since beginning Rapaflo?
From this study (4 months ago):
debcrist on Sep, 2, 2014:
Life with IIH,
It looks like someone is telling them now and finally. There are various law firms that appear to be bringing a case against these pharm co's. Maybe it will help you.
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