Progressive multifocal leukoencephalopathy is found among people who take Methotrexate, especially for people who are female, 60+ old , have been taking the drug for 5 - 10 years, also take medication Mabthera, and have Rheumatoid arthritis . We study 197,008 people who have side effects while taking Methotrexate from FDA and social media. Among them, 310 have Progressive multifocal leukoencephalopathy. Find out below who they are, when they have Progressive multifocal leukoencephalopathy and more.
On eHealthMe you can find out what patients like me (same gender, age) reported their drugs and conditions on FDA and social media since 1977. Our tools are free and anonymous. 86 million people have used us. 300+ peer-reviewed medical journals have referenced our original studies. Start now >>>
Methotrexate has active ingredients of methotrexate sodium. It is often used in rheumatoid arthritis. (latest outcomes from Methotrexate 212,455 users)
Progressive multifocal leukoencephalopathy (rapidly progressive neuromuscular disease caused by opportunistic infection of brain cells) has been reported by people with multiple sclerosis, relapsing-remitting multiple sclerosis, chronic lymphocytic leukaemia, non-hodgkin's lymphoma, rheumatoid arthritis (latest reports from 7,273 Progressive multifocal leukoencephalopathy patients).
On Oct, 17, 2016
197,008 people reported to have side effects when taking Methotrexate.
Among them, 310 people (0.16%) have Progressive Multifocal Leukoencephalopathy
* Approximation only. Some reports may have incomplete information.
** Reports from social media are used.
How to use the study: print a copy of the study and bring it to your health teams to ensure drug risks and benefits are fully discussed and understood.
Hi, I had CLL and took Rituxan and a year later I couldn't see. I had s MRI and they found lesions in the occipital lobe of my brain. My oncologist did a work up and had no clue as to what it may be. I finally went into NYC and had a brain biopsy and then they determined it was PML. That was in July 2014 and I was given weeks to months to live. My daughter took my all over the country to various doctors who gave us no hope. We then found Dr. Berger at the university of penn who finally said that these two medications maritzapine and mefloquine you have nothing to lose. I took them for the next several months and saw Dr. Berger monthly, things seemed to look better and he said there is a clinical trail at the National Institution of Health in Maryland he called his friend Dr. Avi Nath and I was a candidate for a tcell transfer which had to be approved by the FDA but over the next few months my lesions shrank and I regained my ability to walk much better, but never regained my eyesight. I'm still enrolled in the clinical study being that they can try to understand how and why I survived. Maybe they can help another person who is afflicted with this horrible disease.
I started a low dose (10 mg) of methotrexate for rheumatoid arthritis last week and noticed this week, after taking my second does, that my face is breaking out. Does anyone have any similar experiences? I also take 5 mg of folic acid daily. Thanks for any help you can offer up.
Not sure what where to go with this. I have fibromyalgia and relapsing polchondritus also a disability from va.. I have my flares mostly under control. As well as what to do when they become apparent. After many years on pharmaceuticals I went a different direction. With medical marijauna. ...
Hi there, My names Adele I am 41 and have RA. I had my Gall Bladder removed in March of this year due to stones and constant infections. 2 years ago I stopped taking MTX subcutaneous and unfortunately my RA has progressed to a point I have (today) re-started these. I have headache, nausea and ...
Several years ago in 2013 I was"diagnosed" with RA. I went through every medication including, humira, embral, to now IV fusions of remicade which has been almost a year. I am not feeling any better and body aches and joint pains getting worse. I started researching my symptoms and lyme kept ...
This is for my father. Shortly after starting methotrexate injections and cortisone for Rheumatoid arthritis my father started having language difficulties and now has dementia. He was diagnosed with Pick's disease. Could it be caused by these drugs? He is still taking them.
I was recently diagnosed with rheumatoid arthritis. I was first prescribed sulfasalazine but didn't improve on it after 7 weeks. My doc recently switched me to methotrexate and folic acid. She also gave me meloxicam and predisone to take as needed. I have not taken these last two. I've ...
Hi, I had CLL and took Rituxan and a year later I couldn't see. I had s MRI and they found lesions in the occipital lobe of my brain. My oncologist did a work up and had no clue as to what it may be. I finally went into NYC and had a brain biopsy and then they determined it was PML. That was in ...
Hi! Ive been taking these drugs for rhumatoid arthritis for approximately 3 months. I've experienced almost daily fatigue , some stomach upset during the night, as well as a cough occuring randomly . I feel like the fatigue, and cough are somehow related to the drugs. I would like to stop ...
NOTE: The study is based on active ingredients and brand name. Other drugs that have the same active ingredients (e.g. generic drugs) are NOT considered.
WARNING: Please DO NOT STOP MEDICATIONS without first consulting a physician since doing so could be hazardous to your health.
DISCLAIMER: All material available on eHealthMe.com is for informational purposes only, and is not a substitute for medical advice, diagnosis, or treatment provided by a qualified healthcare provider. All information is observation-only, and has not been supported by scientific studies or clinical trials unless otherwise stated. Different individuals may respond to medication in different ways. Every effort has been made to ensure that all information is accurate, up-to-date, and complete, but no guarantee is made to that effect. The use of the eHealthMe site and its content is at your own risk.
You may report adverse side effects to the FDA at http://www.fda.gov/medwatch/ or 1-800-FDA-1088 (1-800-332-1088).
If you use this eHealthMe study on publication, please acknowledge it with a citation: study title, URL, accessed date.