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Review: could Mirena cause Endometriosis?

We study 62,540 people who have side effects while taking Mirena from FDA and social media. Among them, 90 have Endometriosis. Find out below who they are, when they have Endometriosis and more.

Stay connected: join a mobile support group for people who take Mirena and have Endometriosis >>>

Mirena

Mirena (latest outcomes from 62,889 users) has active ingredients of levonorgestrel. It is often used in birth control.

Endometriosis

Endometriosis (appearance of endometrial tissue outside the uterus and causing pelvic pain) (latest reports from 11,240 patients) has been reported by people with multiple sclerosis, birth control, rheumatoid arthritis, pain, osteoporosis.

On Aug, 11, 2014: 62,531 people reported to have side effects when taking Mirena. Among them, 90 people (0.14%) have Endometriosis. They amount to 0.80% of all the 11,228 people who have Endometriosis on eHealthMe.

Trend of Endometriosis in Mirena reports

Time on Mirena when people have Endometriosis * :

< 1 month1 - 6 months6 - 12 months1 - 2 years2 - 5 years5 - 10 years10+ years
Endometriosis17.39%26.09%5.80%18.84%18.84%7.25%5.80%

Age of people who have Endometriosis when taking Mirena * :

0-12-910-1920-2930-3940-4950-5960+
Endometriosis0.00%0.00%2.35%41.18%31.76%18.82%5.88%0.00%

Severity of Endometriosis when taking Mirena ** :

n/a

How people recovered from Endometriosis ** :

n/a

Top conditions involved for these people * :

  1. Contraception (45 people, 50.00%)
  2. Menorrhagia (14 people, 15.56%)
  3. Endometriosis (12 people, 13.33%)
  4. Anxiety disorder (4 people, 4.44%)
  5. Prophylaxis (3 people, 3.33%)

Top co-used drugs for these people * :

  1. Albuterol (4 people, 4.44%)
  2. Yasmin (4 people, 4.44%)
  3. Alprazolam sr (4 people, 4.44%)
  4. Seasonique (2 people, 2.22%)
  5. Nsaid's (2 people, 2.22%)

* Approximation only. Some reports may have incomplete information.

** Reports from social media are used.

Comments for this study:

shell (5 days ago):

I am 28 and was diagnosed with endometriosis in 2010; two years after having the Mirena IUD removed through laproscopic surgery. Why the surgery you ask? Two weeks after the IUD was inserted it punctured through my uterus. I was very nervous about all of the side effects to the Mirena so i checked for the string daily and one day they just weren't there. I went to the Dr. and had an X-ray revealing the IUD was outside the uterus and somewhere by the intestines. Because of its placement and position i needed to have emergency surgery. They were afraid it would puncture my intestines and cause further problems. So with two children and husband at home i went in for surgery. All went well and I recovered as expected. I thought that was it, all good now. WRONG! Over the next two years I had more than normal periods, with more bleeding, more pain, and lasting 2-3 days longer. Pain with intercourse was frequent and I eventually developed cysts. At one time there was a rather large chocolate cyst that needed to be removed. This meant back in for surgery. After this surgery they told me they got the cyst but had to take that ovary and tube as well because it was too damaged. Then the even worse news.....you have stage 3 endometriosis. I've been dealing ok with this now, they removed as much as safely possible but I just want everyone to know I never had any kind of reproductive issue ever. No pain, at least not more than normal, and never had endometriosis before this. So yes I do blame the Mirena IUD and wish I would have been less naive and not said, "this won't happen to me."
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Missesllj (10 months ago):

I am 21 and I had my IUD put in in July of 2012 and had problems pop up after. I was getting extremely bad cramps that would take me to the ground sex became unbearable and the pain made me so sick I couldn't eat anymore. Finally went to the doctor and the ultrasound showed I had 8 ovarian cysts so I was put on meds for a month and went back with little relief they then ordered a laparoscopy which showed endometriosis keep in mind I had never had an ovarian cyst before getting the mirena nor any problems in that area. I was told that it was genetic blah blah..no it's not I have no family history of this I've done my family research. I think it's odd how I've read hundreds of posts of women being diagnosed with endometriosis after having a mirena put in. And for endogirl maybe you should do your research there is ingredients in medication and lots of other products (deodorant being one) that cause something called reproductive toxicity which is a cause of endometriosis. There's a lot more to endometriosis than are in the books so like I said do your research before you tell these people they are wrong.
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samantha (2 years ago):

hey i had the IUD back in 2008, my dr said the first one fell out an they put a second one in an i had problems with that. had it taking out in 2009 an was told that it was put in wrong an me an my husband cant get pregant right now an we have been trying for the past 4 year. so i think the IUD has caused problems with me.
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endogirl (2 years ago):

For those with endo...Mirena DID NOT cause it. You were probably born with it. Also medications cannot cause endometriosis. Please, for yourself and others, do some research and educate yourselves! There are plenty of books on endo. I get very tired of reading misrepresentations of endometriosis and what causes it...this is why it is not taken seriously.
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brittany (2 years ago):

I had the mirena about 4 years ago and had it in for about 4 months and started to have very bad pelvic pains, i had it taken out and 2 months later i was told that i have endo... this is very disappointing for me cuz i was on 19 at the time. my husband and i have been trying to have a baby since my iud was taken out... and still no luck.. does anyone else feel it was the mirena that caused the endo? also visit baddrug.com and the mirena iud is listed on there... all the symptons they talk about are symtpons of the endo...
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Carrie (28 yrs) (2 years ago):

I really wish you the best. I struggled just trying to get the diagnosis for over a year. I will someday have endo again, it's bound to happen. For now though, it seems to be at bay. I've been put on Lo Estrin 24 to help control it from coming back, if you can remember to take a pill everyday I would suggest you go that route. Mirena was great for the simplicity of not having to take something everyday, but not worth the pain everyday. If you can, it would be better to try to get pregnant sooner rather than later, if the endo gets too overwhelming for your system your chances of naturally getting pregnant will decline rapidly. Best of luck to you!
Also, I've heard there is a suit against the manufacturers of Mirena due to their not being fully honest about side effects. I'm thinking of looking into it myself.
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Trista (2 years ago):

When I had the lap surgery the Dr. removed the IUD at that time since I was coming near the five year mark. He recommended to have a new one fitted. The second Mirena I did fine with but the treatments are killing me ( not literally). I really do want to get pregnant but right now in at this time, financially isn't the best. I have read up on endo and I did find that getting pregnant is also the best option for it. I'm talking with my Dr. today about possibly removing the Mirena since this will also be my last treatment for the Lupron Depot.

I'm glad to hear that you haven't had any endo reoccurring. I'll keep you updated with what the Dr. says and how things go.
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Carrie (2 years ago):

I also used Mirena and about 3 years after having it inserted had to undergo laproscopic surgery to remove the endo. I had a very rough start with the Mirena, for several months I had uncontrolled bleeding and extremely heavy periods. My doctor, (who by the way was the best!)requested I have the Mirena removed and then he do the surgery. Told me it was "textbook" and then gave me several options to treat my endo after the surgery. Including the time consuming Lupo Depron. The best option in his opinion was to try to get pregnant, which was a plan I had anyways. I became pregnant and have yet to have any issues with endo. I've been endo free for almost three years now and have a handsome little boy. I will never go back to Mirena. It was a total nightmare.
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Trista (2 years ago):

I've always had heavy bleeding until I got the mirena. I was fine for years. Then the last two and a half years of being on the Mirena, I started having extreme pelvic pain. My GYN did a laparoscopy diagnostic and come to find out I have endometriosis. Could the Mirena have caused the endometriosis? I've never had endometriosis and I'm only 27. My husband and I would like to have a kid but we don't want to try since I'm going through treatments and those treatments are a pain to deal with. I'm having severe mood swings, depression ( which I already have but has worsened ), migraines, forgetfulness, and massive weight gain, not including extreme cravings. I had the surgery in April of this year and a new Mirena put in at that time. That's when everything started to get worse. I still have some pelvic pain now that im also on a ten day estrogen tabs for when i get my monthly injection. Im worried that the Mirena caused that endometriosis and i might never be able to get pregnant.
I was having the signs of bei pregnant with feel nausious by the smell and site of food for over a week. I was tested twice and both came out negative. Please help me in finding out if the Mirena is the cause of this.
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How to use the study: print a copy of the study and bring it to your health teams to ensure drug risks and benefits are fully discussed and understood.

You can also:

Get connected! Join a mobile support group:
- group for people who take Mirena and have Endometriosis
- group for people who take Mirena
- group for people who have Endometriosis

Comments from related studies:

  • From this study (1 week ago):

  • I've had flank pain on my left side for several months now. Some days its awful some days slim to none. Usually when I take 800 mg of Ibuprofen they pain is tolerable. I went to the doctor for it once and they associated it with being a muscle pain, and gave me a relaxer. That makes me tired and doesn't help. They also gave me an antibiotic because I tested positive for a UTI.

    Any ideas? Could the pain be from my Mirena?

    Reply

  • From this study (3 weeks ago):

  • I have severe lower pain and Kidney , gastro have been ruled out. Could Humira aggravate endometrosis to cause severe pain

    Reply

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More reviews for: Mirena, Endometriosis

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