Review: could Mirena cause Fibromyalgia?
Summary: Fibromyalgia is found among people who take Mirena, especially for people who are female, 30-39 old, have been taking the drug for 6 - 12 months, also take medication Amitriptyline hcl, and have Birth control.
We study 62,587 people who have side effects while taking Mirena from FDA and social media. Among them, 29 have Fibromyalgia. Find out below who they are, when they have Fibromyalgia and more.
You are not alone: join a mobile support group for people who take Mirena and have Fibromyalgia >>>
Mirena has active ingredients of levonorgestrel. It is often used in birth control. (latest outcomes from 62,945 Mirena users)
Fibromyalgia (a long-term condition which causes pain all over the body) has been reported by people with osteoporosis, pain, depression, high blood cholesterol, rheumatoid arthritis. (latest reports from 26,917 Fibromyalgia patients)
On Jan, 11, 2015: 62,581 people reported to have side effects when taking Mirena. Among them, 29 people (0.05%) have Fibromyalgia.
Time on Mirena when people have Fibromyalgia * :
|< 1 month||1 - 6 months||6 - 12 months||1 - 2 years||2 - 5 years||5 - 10 years||10+ years |
Age of people who have Fibromyalgia when taking Mirena * :
Severity of Fibromyalgia when taking Mirena ** :
|least||moderate||severe||most severe |
How people recovered from Fibromyalgia ** :
|while on the drug||after off the drug||not yet |
Top conditions involved for these people * :
- Contraception (11 people, 37.93%)
- Depression (3 people, 10.34%)
- Menorrhagia (2 people, 6.90%)
- Fibromyalgia syndrome (1 people, 3.45%)
- Hay fever (1 people, 3.45%)
Top co-used drugs for these people * :
- Amitriptyline hcl (2 people, 6.90%)
- Sertraline hydrochloride (2 people, 6.90%)
- Gabapentin (1 people, 3.45%)
- Seasonelle (1 people, 3.45%)
- Sertraline (1 people, 3.45%)
* Approximation only. Some reports may have incomplete information.
** Reports from social media are used.
How to use the study: print a copy of the study and bring it to your health teams to ensure drug risks and benefits are fully discussed and understood.
Do you have Fibromyalgia while taking Mirena?
You are not alone! Join a mobile support group:
- support group for people who take Mirena and have Fibromyalgia
- support group for people who take Mirena
- support group for people who have Fibromyalgia
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Can you answer these questions (Ask a question):
- Could fibromyalgia be caused from a gram negative infection 37 years ago?
I have fibromyalgia and chronic fatigue that after being relatively stable is now becoming unmanag. I am trying to trace background my medical history to possibly find a cause for these syndroms.
- Is it safe to take demerol while taking tramadol hydrochloride and hydroxychloroquine (2 answers)
I am experiencing acute, debilitating pain due to the Chikungunya virus, which has reintroduced all of the previous painful symptoms I have,ongoing and in the past, from Fibromyalgia, Arthritis, tendonitis and severe headaches. It's in its 38th day and I am basically crippled from neck to feet. Have to sleep propped up as arms throb with pain when horizontal. The only thing that has subdued the pain slightly are Oxycocet and Ibuprofen, but the pain never goes away. My hands and feet are so inflammed it's difficult to perform even the smallest tasks of personal hygiene and housekeeping. I have difficulty controlling my bladder and often don't make it to the washroom in time. Just started on Demerol today so will no longer take the Oxycocet, but am concerned of the interactions with Demerol, Hydroxychloroquine and Tramadol Hydrochloride extended release tablets that I take daily for the Fibromyalgia and Arthritis. I have dealt with a great deal of pain through the years, but I now have the pain of every serious illness I have had in my lifetime, all at the same time. I honestly didn't think a person could deal with this much pain at once. I have tried and am still taking several vitamins and herbal supplements as well as drinking tons of water and eating really well. Lots of berries, dark vegetables, apples, yogurt and minimal meat. Taking turmeric, papaya leaf, ginger, cinnamon and boswellia for the inflammation. Taking minimal wheat products, sugar and no alcohol. Also, drinking green, fennel and nettle tea daily. I know this is a lot of information, but I really need help and wonder if anyone has any suggestions! Thanking you in advance!!!
- Does anyone experience heart palpitations causedby their acid reflux ?
I have had acid reflux/Gerd for 4 years + Was not believed that symptoms were real for a while as had no heartburn and a diagnosis of Fibromyalgia which even now some medics think is imaginary...it's NOT!!! Following a demeester score of 45 ( very high confirmation of acid reflux) and discovery of a large hiatal hernia, ( a classic physical cause of acid reflux) I had hernia repair operation and LINX anti reflux surgery. Throughout the four years a major symptom of my acid reflux were heart palpatations. They started at the same time I started with reflux and cleared up after the surgery. I have been reflux free palpitation free and antacid free for four months. then I was put on Gabapentin for back spasm and the reflux returned along with the palpitations. Medics keep insisting this is just anxiety yet eat a food that gives me reflux also starts the palps which is the indicator of the reflux as I do not have heartburn. Comes on when relaxing and eating watching tv ( no anxiety present) and when I am sleeping peacefully ( no anxiety present) my heart wakes me up and fires off into tachycardia. Recently a doctor has said it is now known that acid reflux irritates the nerves in the solar plexus area and that triggers the palps. Anyone else experienced this? Are there any studies on it at all? Thanks all.
- Soon as i got the mirena two months later i started getting spots of vitiligo what should i do get the mirena removed and call and lawyer
I got the Mirena inplanted In My uterus in Dec 2012 and Feb 2013 started to see spotes of Vitiligo I went to the dermatologist and was told that i for sure have Vitiligo.
- Mirena causing infected ingrown toenails?
I've had mirena for 3 months and I've already noticed regular joint stiffness even after brief periods of rest. To boot I've gotten several ingrown toenails on each foot which is very unusual because I've not changed anything in my hygiene and I've never had ingrown toenails before mirena. It's quite painful and I have at least one ingrown toenail on each foot.
More questions for: Mirena, Fibromyalgia
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- Mirena and the paranoia
Okay, I will get one thing straight, I DO love my IUD. Luckily I'm one of the ones where it doesn't fall out of me or migrate. It stays put and does it's job.
I know there have been endless reports of symptoms. I will admit, I have a few of the more common ones, such as false pregnancy symptoms, or cysts, but recently, a new symptom has developed.
I've had my IUD for just a little over a year now and a few months ago, I had a horrible paranoia and anxiety attack. Let me give some examples in what I mean.
When I'm feeling "normal", I don't really care what my S.O does in his spare time because I DO trust him and I know deep down that he's faithful. Every other month, it seems that my hormones act up and I go into panic fits when bad thoughts come to mind and I misinterpret almost everything he says and think that he's now suddenly against me and I freak out.
I know many people are probably thinking that I'm just having trust issues, I'm really not, let me explain more. He can say the same things one day, and I wouldn't care, and the week (yes, my paranoia seems to last a week or two) I'm anxious, he can say the same thing and I'll panic to the point of passing out. And it's not just him, this goes for my friends, or coworkers. I begin to think that they're all changing when in reality, it's me that's acting different. Again, it's not immature trust issues, I got bad paranoia. I couldn't eat, I couldn't focus. I only focused on the bad and made up thoughts in my head of being left by him or betrayed by my friends, I would get very dizzy and shaky with my muscles aching. My pulse would be calm for a bit and then it would shoot back up as I got panic attacks.
Luckily my S.O is patient with me and helps me through it, but the first time this happened, it scared me beyond belief. After my paranoia stopped, I reflected on that week and thought "My God, did I seriously freak out over that??" it seems to happen a bit before my period or after.
Let me also say that I've been on the pill for years and none of this happened. It all started around a year of having Mirena and I've looked up that paranoia is a VERY possible side effect. I will say it HAS frustrated me because every time it stirs up a paranoia episode, I feel like a child being backed into a corner with my anxiety. Again, I still know and trust my S.O and friends, but the paranoia fogs my mind and hijacks my emotions to where a simple text that usually means nothing to me, makes me panic, "Omg!! omg!! Why are they texting them?! Why did they say that to me?!! It's not normal!!". If my real personality could jump out during the episodes, I would be smacking myself silly.
I use Mirena as a birth control, but if this keeps up, I may abandon it ASAP but I have to find another solution, so whenever my S.O is able to get a vasectomy, I'm probably getting this IUD removed. Again, it does a good job, but it's getting to the point where these horrible panic attacks aren't worth it.
I'd like to know if anyone else has had similar paranoia or anxiety attacks when having Mirena.
- Had nms in 2005, will trileptal increase chance of recurrence?
In 2005 I had NMS, which was not detected by my drs for 4 months. I'd been on Lexapro & Seroquel for 2 yrs, but was weaned from Lexapro & placed on Lamictal 3/05. Began getting low-grade fevers, which I was told were not caused by the Lamictal. I quit taking it anyway, fevers (along with uncontrollable shivering) continued & got higher. By 5/05 my temps were reaching 105 deg F. Husband said I became combative, refused to go to hospital. Early June/05 he came home to find me wrapped in blankets, with a temp over 105 F. He tried to place me in a tub of cold water, said I was rigid & screamed when he tried to move me. I was in the tub, speaking "in tongues" (his description, I have no memory of this). He called 911, took me to hospital. I woke, no idea where I was or why. After a lumbar puncture & 2 days in ICU I went home. The fevers continued...2 weeks later he came home to find me wrapped in sheets, towels, blankets, with the heat on full (it was in the 90's outside) he called ambulance again. I awoke to find myself under an ice blanket with nurses pushing large vials of dantrolene into both arms, several liters. Another LP, a stint in ICU...this time they told me it was NMS. The dr who dxd me said he was surprised I was alive, & not a vegetable, as my temp had peaked at 109 deg F. I suffered brain damage; short-term memory loss, brain can't control my body temp, my blood pressure went up. An arteriogram showed completely healthy heart & arteries, no plaque at all. I lost all body fat as well as some muscle mass. The fevers continued even after stopping the Seroquel. I visited my PCP for a checkup in 9/05, temp was normal. I started shuddering, my temp went up a full degree every 5 minutes. PCP admitted me to ER, my heart rate was over 272 B/M; they stopped my heart 3 times to "reset" it, which didn't work. I spent 3 days in hospital. Several months later my P doc tried me on Lamictal alone; I got Stevens-Johnson syndrome. I stopped the drug as soon as the signs appeared. I've been untreated, except for Neurontin & Primidone, until my manic episodes became unlivable. 3 weeks ago I went 8 days with no sleep, became psychotic. My P doc gave me Trileptal, which has evened my moods, but I've been getting low-grade fevers (highest was 103.6). Would having had NMS in the past make me more prone to falling to it again with the Trileptal? It's the only new med I've taken in over a year.
- Diagnosed with postural orthostatic tachycardia syndrome after mirena
After getting the Mirena put in, I got really sick. I went home and got super dizzy, nauseous, and tired. I felt so sick and could barely function. I called the doctors office and they said it couldn't be from the Mirena. She said that I must have the flu. Well, I kept it in for a little while longer. I then started losing my hair. I went back into my doctors office because they thought I was experiencing the symptoms for the Mirena going through my uterine wall. The ultra sound was fine. She reassured me that the Mirena could not be the cause of my complications. So, a week a later I went to another doctor to have the Mirena taken out.
Never quite felt like myself and a year later I got diagnosedI with Postural Orthostatic Tachycardia Syndrome, after a tilt table test was performed. It's weird to me that my symptoms started almost immediately after the Mirena was put in.
- Not a great experience
I was on norvasc for two months and had to go off because of severe swelling of feet and legs. Also rapid heart beat and very profuse sweating. it was horrible. It also raised my blood pressure. after going off BP dropped by @least 10 points both diastolic and systolic.
- So sleepy with savella
I am just finishing the starter pack of Savella and I am so sleepy I can't hold my head up. My pain and other Fibromyalgia symptoms are tremendously better but I am sleeping like crazy. Hopefully I can have both doses at night and this will help. I am so glad to not be in pain but I need to be awake also. I am going to talk to my doctor about perhaps another medication to help curb the sleepiness. I can't use caffeine or stimulants due to anxiety but need something to take this sleepiness away.
More reviews for: Mirena, Fibromyalgia
Comments from related studies:
From this study (2 years ago):
Is there a connection with mirena and fibromyalgia?
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