Home > Topamax > Nf1 > Topamax and Nf1
Review: could Topamax cause Nf1 (Neurofibromatosis-1)?
We study 22,500 people who have side effects while taking Topamax from FDA and social media. Find out below who they are, when they have Nf1 and more.
Topamax (latest outcomes from 24,533 users) has active ingredients of topiramate. It is often used in migraine.
On Aug, 22, 2014: No report is found.
Do you have Nf1 while taking Topamax?
Get connected! Join a mobile support group:
- group for people who take Topamax
Comments from related studies:
From this study (6 days ago):
Wondering if sinusitis is a side effect of methotrexate?
From this study (1 week ago):
I have experienced hearing loss within the past 8 years and wondered if it had to do with medications I have taken. I have taken others during that time including Abilify, Trileptal, Effexor. I recently have noticed a decrease in my hearing.
From this study (1 week ago):
Was given the combination of diethylpropion and topamax. After one to two weeks I developed an extremely dry and terrible burning sensation in my mouth, lips and tongue combined with a very salty and metallic taste in my mouth. I have had every test from various drs., including an ENT, gastroenterologist, internist, dentist. Several prescribed medications from oral rinses, yeast medications, gabapentin, lozenges, capsasin, and finally Klonopin, which worked for approximately one month, but the burning and salty metallic taste returned as badly as ever. I AM GOING INSANE. Can you offer me any help. I also use sensodyne toothpaste and oral rinse for dry mouth. I feel extremely thirsty all the time. And, yes I've been tested for and do not have diabetes. This has been ongoing since February 2013. I am absolutely convinced one of the two drugs, or the combo of the two caused this as I was perfectly fine, other then being fat. My drs. look at me as if I'm crazy when I mention this fact. It is so frustrating to be treated in this manner. Thank you.
s on Aug, 13, 2014:
It is the topomax. The thirst, that horrible taste in your mouth, tingling in your hands and feet...They are all side effects that I have had after years...I have been taking it for seizures and migraines for a while now.
Jaz on Aug, 12, 2014:
Have they ever diagnosed you?
I have had BMS for 4.5 years, and other symptoms are slowly added to it, such as Tingling hands & feet and sore throat. Now my teeth also tingle, and hurt.
Have you ever been tested for Heavy Metals (the proper way: pre & post provocation, not just blood test) and for Lyme Disease? Lastly for MTHFR?
I have not been treated successfully yet, but hoping to be soon.
Post a new comment OR Read more comments
Can you answer these questions (what is this?):
- Omeprazole or pantoprazole?
I take an oral contraceptive, Diane-35 ED, which is not in the list of drugs to choose from on this site.
Recently, the medication I was taking for my stomach ulcer (Omeprazole) became unavailable in my country of residence and was replaced by Patoprazole. I started taking it yesterday morning a ...
- Has anyone been prescribed methotrexate for granuloma annulare?
I have had GA for 2 years now, however it has gotten progressively worse the past 6 months. It has now spread over 80% of my body. I am seeing an Endocrinologist next week as I believe my thyroid may play a big role in this. My Regular Dr. suggested I speak to Endocrinologist about a drug called Met ...
- Cranberry juice making percocet not show up in a uv test.
Had gotting Kidney Stones and had been drinking about 3 gallons of cranberry juice and bunch of water and went in for a ut test and it came back neg for percocet. I always take my pills but don't alway take them at the right time cause sometimes i have to drive my niece so i wouldn't take them when ...
More questions for: Topamax, Nf1
You may be interested at these reviews (what is this?):
- Seizure disorder med problems
Velafaxine 150 mg. 1 per day.
In process of switching from Topiramate 50 mg. 1 pill in morning & one at night (going off of this because of kidney stones) Was on this medication approximately 10 years.
Lamotrigine 2 25mg pills in morning and 2 - 25 mg. pills at night.
On the 3rd day of ...
- Psychosis, weight loss and topamax
I had a brain hemorrhage in my occipital lobe. It left me with with a partial seizure disorder. The seizures would interrupt my ability to see. I was trying different anti-seizure medication and they all made me more tired and more depressed. My neurologist decided to try topamax. On topamax I ...
- Eczema and birth control-microgestin
I started getting eczema over the last year and recently decided it may be from the birth control as well, which I started taking @ 2 months before I got the eczema and skin started breaking out...weight gain, etc. I am on singulair, westcort cream, moisture/kenalog, exederm cream, cerevue wash, cet ...
More reviews for: Topamax, Nf1
On eHealthMe, Topamax (topiramate) is often used for migraine. Find out below the conditions Topamax is used for, how effective it is, and any alternative drugs that you can use to treat those same conditions.
What is Topamax used for and how effective is it:
Other drugs that are used to treat the same conditions:
Drugs in real world that are associated with:
Could your condition cause it?
NOTE: The study is based on active ingredients and brand name. Other drugs that have the same active ingredients (e.g. generic drugs) are NOT considered.
WARNING: Please DO NOT STOP MEDICATIONS without first consulting a physician since doing so could be hazardous to your health.
DISCLAIMER: All material available on eHealthMe.com is for informational purposes only, and is not a substitute for medical advice, diagnosis, or treatment provided by a qualified healthcare provider. All information is observation-only, and has not been supported by scientific studies or clinical trials unless otherwise stated. Different individuals may respond to medication in different ways. Every effort has been made to ensure that all information is accurate, up-to-date, and complete, but no guarantee is made to that effect. The use of the eHealthMe site and its content is at your own risk.
You may report adverse side effects to the FDA at http://www.fda.gov/medwatch/ or 1-800-FDA-1088 (1-800-332-1088).
If you use this eHealthMe study on publication, please acknowledge it with a citation: study title, URL, accessed date.