Progressive multifocal leukoencephalopathy is found among people who take Tysabri, especially for people who are female, 40-49 old , have been taking the drug for 2 - 5 years, also take medication Baclofen, and have Multiple sclerosis . We study 160,513 people who have side effects while taking Tysabri from FDA and social media. Among them, 3,999 have Progressive multifocal leukoencephalopathy. Find out below who they are, when they have Progressive multifocal leukoencephalopathy and more.
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Tysabri has active ingredients of natalizumab. It is often used in multiple sclerosis. (latest outcomes from Tysabri 160,722 users)
Progressive multifocal leukoencephalopathy (rapidly progressive neuromuscular disease caused by opportunistic infection of brain cells) has been reported by people with multiple sclerosis, relapsing-remitting multiple sclerosis, chronic lymphocytic leukaemia, non-hodgkin's lymphoma, rheumatoid arthritis (latest reports from 7,273 Progressive multifocal leukoencephalopathy patients).
On Oct, 17, 2016
160,513 people reported to have side effects when taking Tysabri.
Among them, 3,999 people (2.49%) have Progressive Multifocal Leukoencephalopathy
* Approximation only. Some reports may have incomplete information.
** Reports from social media are used.
How to use the study: print a copy of the study and bring it to your health teams to ensure drug risks and benefits are fully discussed and understood.
I have Multiple sclerosis. I have been on tysabri for 2.5 years. In june of 16' I had my routine blood tests including a CBC. I got a call from my neurologist saying my WBC were over 14k. He asked if I was sick. I was not. I had the same CBC test done in July and Aug. of 2016. Still WBC over 14k. I was sent to an oncologist were after further testing (blood work) I was diagnosed with CLL Chronic lymphocytic leukemia. I was first diag. w/ MS in 2010 however, MRI revealed (via new -vs- old lesions) I had MS for years and was mis-diagnosed. So, not just MS but CLL.
Hi, I had CLL and took Rituxan and a year later I couldn't see. I had s MRI and they found lesions in the occipital lobe of my brain. My oncologist did a work up and had no clue as to what it may be. I finally went into NYC and had a brain biopsy and then they determined it was PML. That was in July 2014 and I was given weeks to months to live. My daughter took my all over the country to various doctors who gave us no hope. We then found Dr. Berger at the university of penn who finally said that these two medications maritzapine and mefloquine you have nothing to lose. I took them for the next several months and saw Dr. Berger monthly, things seemed to look better and he said there is a clinical trail at the National Institution of Health in Maryland he called his friend Dr. Avi Nath and I was a candidate for a tcell transfer which had to be approved by the FDA but over the next few months my lesions shrank and I regained my ability to walk much better, but never regained my eyesight. I'm still enrolled in the clinical study being that they can try to understand how and why I survived. Maybe they can help another person who is afflicted with this horrible disease.
I have no known food allergies but just experienced upper lip swelling that resolved but now it is my lower lip and a rash on hands. Began while eating pizza with a beer. Been on the infusions since this past November.
I have tried steroid tablets, creams, ointments but nothing helps. I also have tried rubbing aloe vera plants on the rash and during summer the rash it soo hot and inflamed I have to apply cold packs.
I have Multiple sclerosis. I have been on tysabri for 2.5 years. In june of 16' I had my routine blood tests including a CBC. I got a call from my neurologist saying my WBC were over 14k. He asked if I was sick. I was not. I had the same CBC test done in July and Aug. of 2016. Still WBC ...
Hi, I had CLL and took Rituxan and a year later I couldn't see. I had s MRI and they found lesions in the occipital lobe of my brain. My oncologist did a work up and had no clue as to what it may be. I finally went into NYC and had a brain biopsy and then they determined it was PML. That was in ...
Hi, my name is mafe! I am from Bogota, Colombia and I am 31 years. I was diagnosed with multiple sclerosis this year and started treatment with Tysabri this month but smoke marijuana for years and I know that I can have counterproductive effects with this treatment. I join this group because I ...
I have M.S, and have been on Tysabri for 15 years (clinical drug trial) my last blood test returned positive to JC Virus. I don't know what to do. I am also in the age group of the most common deaths from PML - Natalizumab related female aged 50-59
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