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Review: could Tysabri cause Progressive multifocal leukoencephalopathy?

We study 97,537 people who have side effects while taking Tysabri from FDA and social media. Among them, 2,943 have Progressive multifocal leukoencephalopathy. Find out below who they are, when they have Progressive multifocal leukoencephalopathy and more.

Get connected: join a mobile support group for people who take Tysabri and have Progressive multifocal leukoencephalopathy >>>

Tysabri

Tysabri (latest outcomes from 97,677 users) has active ingredients of natalizumab. It is often used in multiple sclerosis.

Progressive multifocal leukoencephalopathy

Progressive multifocal leukoencephalopathy (rapidly progressive neuromuscular disease caused by opportunistic infection of brain cells) (latest reports from 23,885 patients) has been reported by people with multiple sclerosis, relapsing-remitting multiple sclerosis, chronic lymphocytic leukaemia, rheumatoid arthritis, non-hodgkin's lymphoma.

On Sep, 14, 2014: 97,534 people reported to have side effects when taking Tysabri. Among them, 2,943 people (3.02%) have Progressive Multifocal Leukoencephalopathy.

Trend of Progressive multifocal leukoencephalopathy in Tysabri reports

Time on Tysabri when people have Progressive multifocal leukoencephalopathy * :

< 1 month1 - 6 months6 - 12 months1 - 2 years2 - 5 years5 - 10 years10+ years
Progressive multifocal leukoencephalopathy2.76%3.48%4.88%15.32%68.96%4.56%0.04%

Gender of people who have Progressive multifocal leukoencephalopathy when taking Tysabri * :

FemaleMale
Progressive multifocal leukoencephalopathy68.23%31.77%

Age of people who have Progressive multifocal leukoencephalopathy when taking Tysabri * :

0-12-910-1920-2930-3940-4950-5960+
Progressive multifocal leukoencephalopathy0.00%0.00%0.74%6.41%23.34%37.93%21.97%9.62%

Severity of Progressive multifocal leukoencephalopathy when taking Tysabri ** :

leastmoderateseveremost severe
Progressive multifocal leukoencephalopathy0.00%0.00%0.00%100.00%

How people recovered from Progressive multifocal leukoencephalopathy ** :

n/a

Top conditions involved for these people * :

  1. Multiple sclerosis (2,186 people, 74.28%)
  2. Relapsing-remitting multiple sclerosis (638 people, 21.68%)
  3. Depression (180 people, 6.12%)
  4. Muscle spasticity (146 people, 4.96%)
  5. Fatigue (99 people, 3.36%)

Top co-used drugs for these people * :

  1. Baclofen (213 people, 7.24%)
  2. Vitamin d (146 people, 4.96%)
  3. Lyrica (108 people, 3.67%)
  4. Provigil (103 people, 3.50%)
  5. Zanaflex (100 people, 3.40%)

* Approximation only. Some reports may have incomplete information.

** Reports from social media are used.

How to use the study: print a copy of the study and bring it to your health teams to ensure drug risks and benefits are fully discussed and understood.

Do you have Progressive Multifocal Leukoencephalopathy while taking Tysabri?

Get connected! Join a mobile support group:
- group for people who take Tysabri and have Progressive Multifocal Leukoencephalopathy
- group for people who take Tysabri
- group for people who have Progressive Multifocal Leukoencephalopathy

Comments from related studies:

  • From this study (1 month ago):

  • I am asking if the cause is from tysabri

    Reply

  • From this study (3 months ago):

  • have been having severe back pain on lower spine right above tail bone

    Reply

    Linda on Jun, 9, 2014:

    I reread your symptoms. It is primarily low back pain. It could be osteoarthritis, ankylosing spondylitis, possibly a slipped disc. I take back that it might be hemorrhoids as it sounds too far up. Definitely have it checked out.

    Reply

    Linda on Jun, 9, 2014:

    Did you fall on coccyx ( tailbone ) ? I had similar symptoms and was diagnosed with Ankylosing Spondylitis, an autoimmune disease that affects the spine by coursing inflammation particularly in the sacral iliac joints which are located in your buttock. The pain can radiate to your back and mine sometimes goes to my hips, pelvis and sometimes down to my knee. I am a 52 year old female from their US. If you fell, you could have broken your coccyx, and that could take up to a year to feel better, ask your MD. Could be hemorrhoids, a polyp or mass and your rectum. You should definitely get it checked out.

    Reply

  • From this study (3 months ago):

  • Started 7 / 17 2007. After 46 infusions stopped 3. /. 2011

    Reply

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On eHealthMe, Tysabri (natalizumab) is often used for multiple sclerosis. Find out below the conditions Tysabri is used for, how effective it is, and any alternative drugs that you can use to treat those same conditions.

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