Alpha-1 antitrypsin deficiency (Aat deficiency): Alpha-1 antitrypsin (aat) deficiency is a condition in which the body does not make enough of a protein that protects the lungs and liver from damage
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More questions for: Aat deficiency
My almost 5 year old son is about to start Adderall. He is also Alpha-1 positive. We have always been extra cautious about any meds since he is compromised and wondered if any folks on here have taken Adderall and are also Alpha-1. He will be taking a 10mg extended release. His only symptoms of Alpha-1 were a couple months of elevated liver levels early last year. No jaundice and liver scan is clear.
Is there anyone out there with both of these? I have had Alpha 1 since 1998 and Myocarditis twice--once in 2010 and again in 2015. My EF is still around 30 percent. I often wonder if there is some connection.
Seeking to join group on behalf of someone else. I think it would be valuable to explore this connection and person is currently unwilling. Hopefully, this person will decide to join soon. Developed involuntary movement symptoms and difficulty walking about 5 years ago. Many tests found no cause and eventually was diagnosed with Conversion Disorder. Very recently, diagnosed with Alpha 1 and wondering if there might be a link. That support group exists suggests there might be. Also, of note, movement symptoms began shortly after a very serious paint fume exposure.
I'm a 57 yrs old and live in Virginia. I was diagnosed with Alpha 1 zz pheno type in 1999. I'very developed limpoma on my arms, legs, palm of my left hand and breasts. Only a couple you can actually see. I was told by my Gp years ago it was a symptom of Alpha 1
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