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I have Mal de DeBarquement Syndrome, nystagmus, and take modafinil for narcolepsy. I also have sleep apnea. My nystagmus is inconsistent, and I am wondering if it is aggravated by modafinil, stress or fatigue. I take 200mg. in the a.m., because it is more effective than taking 100 in the a.m. and 100 in the pm. I was arrested in Arizona for DUI because I made a wrong turn and for no other reason, I was subjected to sobriety tests. I passed the breathalizer, failed the balance and nystagus tests, as I knew I would. When I got home from my trip, the dizzy doc did a formal nystagmus test, which showed nystagmus only in a supine position, but my endocrinologist has always noticed nystagmus at every visit with me standing up. I need to find out what aggravates nystagmus.
My husband is suffering from Nystagmus. This started 5 days ago & his doc took him off Reglan on Tuesday. I wonder how long it will take to totally have it out of his system. He's taken it 14 months for gastroparesis.
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