Chiari malformation: Structural defects in the cerebellum, the part of the brain that controls balance
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I have had headaches, which drs have thought were migraines, since age 14-15 and I'm 50 now. Although there have been stages of relief, they have only gotten worse of the course of my lifetime. Since the 90s when Imitrex cam out I have had quite a bit of success with relief from each headache - but no success with less frequency. I have been on every king of preventative med - beta blockers - calcium channel blocker, tricyclic anti depressants, depakote, topamax - all of it. I was recently diagnosed with a mild chiari. I am simply trying to learn about the correlation between Imitrex and chiari. Could the Imitrex have contributed to the chiari? Is the fact that Imitrex works on many of the heachaches I have an indicator that these are migraines vs chiari headaches? I am considering next steps.
Hello. I have a 9 year old daughter who has borderline Chiari Malformation 1. Her tonsils are 3.3mm herniated. She is experiencing excruciating headaches, neck pain, back pain and leg pain as well. She is on so much medicine and I would like to try something more natural. Anyone had experience with children and using hemp oil or any other product such as this?
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Hi, Im 38 and have Chiari Malformation type 1.. this has lead to a numerous other problems. I'm scheduled for surgery in less than a month.. I also have primary Addison's Disease,. I'm a steroid induced diabetic..The thought of this procedure alone has thrown me into panic and crisis mode.. I feel alone in this journey if anyone else is going through the same thing please let me know.. I've also applied for disability because I was let go from my job aas a nurse for missing because of medical reasons. It's a stressful long procesd😥
I have chiari r malformation and had surgery in March 2015.... my lower back hurts really bad into my hips and tailbone area and my upper back ....usually hurts at bedtime getting up of a morning or getting up from it ting position all my joints hurt most all the time
I've been experiencing severe migraine headaches for as long as I can remember. In 2009, I blacked out and fell straight backwards on cement. I awoke as the emergency crew were working on me, but couldn't see them, the blood build on my brain blinded me. I was rushed to a trauma hospital, where I was diagnosed with a brain aneurysm. They drained the blood out of my head, my eyesight returned, I still could barely move. I was given a 50/50 chance to live. Due to the grace of God, I am here today. The hospital ran every test they could. Most of them on my heart. Nothing was wrong with me. I was sent home with no real answers. The past few years, off and on, the migraine headaches worsened combined with nausea, vomiting, dizziness, fatigue, confusion, slurred speech, irritability, depression, etc. Too many to name. After several tests to rule out other illnesses, I asked my Dr to check my brain bc of the increased symptoms. Although he wrote the prescription for the MRI, their office never called me for a follow up visit. Therefore, I called the imaging place and had them send me a copy of the MRI results. I was diagnosed with Moderate Chiara Malformation 1. I know nothing about it, except for what I've read on the internet about this diagnosis. My symptoms all make sense to me now, I am however alarmed bc I've spent the last four days in my bed, experiencing the worst migraine ever, and the worst symptoms ever. I don't know what to expect next, why I still haven't been contacted by my Dr because it's been several months. If there is help for me, someone replied about a surgery but it sadly didn't end well. Was it bc of the surgery? Or increased symptoms?? I'm looking for answers and my primary care Dr who was supposed to help, and my pain management Dr haven't taken me seriously. I am open to any comments or suggestions regarding my issues. If anyone has any information to offer, please reply. Thank you.
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