Crohn's disease: Condition that causes inflammation of the gastrointestinal tract
On eHealthMe you can find out what patients like me (same gender, age) reported their drugs and conditions on FDA and social media since 1977. Our tools are simple to use, anonymous and free. Start now >>>
I started Remicade in August 2017. Before doing it I tried everything I could think of to try and stay off the medication. I even tried a reintroduction diet, but that got me nowhere and I actually ended up suffering from malnutrition because of it. That is what I believe started the hair loss. But after just my first Remicade dose I noticed a lot falling out. I used to have extremely thick and curly hair, but since then I've lost half of it! And it's only been two months! I'm only 15 and don't want to have to walk into high school bald. Does anyone know of anything that will stop the hair loss and help me get my hair back? I'm technically not supposed to take oral supplements, so creams and/or shampoos and/or any naturopathic ways would be much appreciated.
I just switched from Remicade to Humira, treating my Crohns disease. Developing HFM was a very unexpected side effect. It developed 24 hours orator my first dose. I'm really miserable, can't do my job (caring for newborns) and wondering about others experiences...how long does it last? has anyone had the reaction to every dose? is there anything to put on it or take to reduce the pain and itching? any information and advice welcomed!! thank you..
They recovered from Crohns and surgery, still had cfs chronic fatigue for years, and now are told they have symptoms of dry macular degeneration. Could wheat proteins ATI (amylase trypsin inhibitors) help with their diet? http://medicalxpress.com/news/2016-10-links-protein-wheat-inflammation-chronic.html
More questions for: Crohn's disease
Hi, my name is Mary, I am 53 yr old white female originally from midwest. I was diagnosed with Crohns disease at 20 yeears old. Fibromyalgia came along at about 50 years of age and then RA right after that! Right now all I do is survive day to day. I can't quit my job b/c my job provides the healthcare to my family. I have a very sedentary job but mentally exhausting. Difficult since I am never rested.
Have had high bp most of my adult life and take lisinopril. Have taken some "form" of mesalamine for over 20 years, but last year started Pentasa and my bp has really dropped w/diastolic in the 50's and 60's. Anyone else experience this w/Pentasa???
Hi All, My Name is David. I have been on entyvio since nov 1st 2016. I have had 5 infusions to date. Just after christmas I woke up screaming in the middle of the night as if i had been stabbed in the right rib cage. specifically four inches to the right of the tip of my sternum. as well as burning searing white hot pain in right quadrant and across belly. I have all of the symptoms of Chronic pancreatitis. I respond well to creon. The pain is so severe I cannot stand up, i am screaming!! Eventually i cannot breathe bacause i cannot inflate my lungs to full capacity at the pains peak, it hurts more. so i am forced into a rapid shallow breath pattern. thats when i go to the er. apparently you pass out after that and wake up to repeat the process. I also have had a terrible wet mucous cough the same time as the pain(6 months straight) My gi wants to take me off Entyvio, to see if pancreatitis subsides. I begged for an EUS scan he refused. He has no contingency biologic waiting in the wings for me. I am unemployed and I must be approved with the assistance program, this takes a month sometimes. Does this sound familiar to any of you? I reached remission after fourth infusion. Please help me. I need advice on what to do. I am on 34 mg of dilaudid every day in pain management. thats is how severe the pain is.
I took Levitiracetam for 4 years. 18 months of the end of that time I spend weaning myself from the drug. I was diagnosed with epilepsy. My test did not affirm that diagnosis. I lAter was diagnosed with Bradycardia. Placed a pacemaker to regulate heart. No partial seizures ? Was diagnosed during placement with pacemaker with interstitial lung desease. During Hiatal Hernia repair lung desease was reaffirmed. MRI , later affirmed findings of diveticulites and inflamatory Bowel desease.
More reviews for: Crohn's disease
WARNING: Please DO NOT STOP MEDICATIONS without first consulting a physician since doing so could be hazardous to your health.
DISCLAIMER: All material available on eHealthMe.com is for informational purposes only, and is not a substitute for medical advice, diagnosis, or treatment provided by a qualified healthcare provider. All information is observation-only, and has not been supported by scientific studies or clinical trials unless otherwise stated. Different individuals may respond to medication in different ways. Every effort has been made to ensure that all information is accurate, up-to-date, and complete, but no guarantee is made to that effect. The use of the eHealthMe site and its content is at your own risk.
You may report adverse side effects to the FDA at http://www.fda.gov/medwatch/ or 1-800-FDA-1088 (1-800-332-1088).
If you use this eHealthMe study on publication, please acknowledge it with a citation: study title, URL, accessed date.