Inflammation support group

Support group for people who have Inflammation. To join the group, do any of these: create a post to introduce yourself, ask a question, or simply follow the group.

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  • I was led to believe I was joining a group of...

    I was led to believe I was joining a group of people who had similar inflammatory reactions to Praluent. Maybe I am the group, for now. Anyway, my experience: I'm a 63 year old male Caucasian, MI 2004, CABG X 4 2004, CABG X 3 2005, stents 2007. I have led a healthy lifestyle since my MI, but I am statin intolerant (crippling muscle pain) and so my LDL remained high (120-140). Zetia helped a little. When I read about Praluent in 2015, I asked my Kaiser cardiologist and was advised that Kaiser would not be paying for Praluent. I switched to Blue Shield to get a cardiologist who was confident that I could get the expense covered. I had my first injection on 2/1/2017, a one-month dose, and then two week doses after that until July. Starting 6 weeks after the first injection, all of the joints in both hands swelled and hurt. My hands were about 1 inch wider than ever before and were visibly inflamed. The inflammation went up my arms to my shoulders. In July, it attacked my hips and lumbar spine so severely that I had to quit the exercise routine I'd followed for 13 years. I've also had one episode of syncope (March) and a questionable diagnosis of ventricular tachycardia. I declined a pacemaker and attributed the syncope and arrythmia to the drug. (I'm still here with no further adverse cardiac issues) A rheumatologist conducted appropriate testing in September and ruled out an immune response, but said the drug likely caused an inflammatory response. I am now seeing several orthopedic surgeons who agree that I had an inflammatory response to Praluent. We will try to suppress it, permanently or temporarily, with steroid injections in the near future. At the present time, I have pain on walking, standing, sitting in the same position, but 4 months ago I was doing 45 minutes on a treadmill at full incline. My LDL is back at pre-Praluent levels. I got down to 37 at one point. I am told that levels below 75 can result in arterial plaque regression, but I'll never get there with Praluent. The net effect is to set me back and make premature death a greater likelihood.

    post created 2 months ago

  • Hello group, I am joining and have not yet seen...

    Hello group, I am joining and have not yet seen what others have posted. I feel like my cardiologist and I were rudely surprised by the many side effects of Praluent. If I had known of other people's similar experiences, I would have stopped taking it more rapidly (than 6 months). And what a huge disappointment to have my LDL drop to 37 but to be thwarted from long term benefits, including plaque regression, by hideous side effects.

    post created 2 months ago

  • Has anyone experienced knee or ankle issues after...

    Has anyone experienced knee or ankle issues after taking Predaxa?

    post created 3 months ago

  • Hi! I am so happy to join! I told my doctor that...

    Hi! I am so happy to join! I told my doctor that my c-reactive levels are high. He never mentioned that it could be the meds. Right now,I am seeing a nutritionist. I am on a 25 day elimination diet,as we thought it was a food sensitivity issue. It can't hurt. Does anyone have aches in their arms? Thanks!

    post created 3 months ago

  • I have RA and have experienced heart lining...

    I have RA and have experienced heart lining inflamation and am wondering if the Cialis have caused this inflamation.

    post created 4 months ago

  • Are there successful non-drug remedies for severe...

    Are there successful non-drug remedies for severe muscle and joint pain from Arimidex? Are there helpful back, hip, shoulder and hand exercises ?

    post created 4 months ago

  • I am 72 years old and have always had good...

    I am 72 years old and have always had good health. I have never been epileptic. But then I had a major seizure, I believe caused by reckless overdosage of Prednisone (50 mg/day for an elderly person -- discontinued) for impending pneumonia, causing the seizure and three other side effects of the drug. As a result I was started on 2,000 mg/day (way too high!) of Keppra, when I was barely conscious and unable to ask questions. It started causing me headaches and fatigue, and then..... aphasia! I freaked and weaned myself OFF the Keppra against doctor's advise. I was on it for about 10-12 days. Thank God, the aphasia disappeared. Then the neurologist (who insists Keppra side effects go away immediately!) did a repeat brain MRI and blood tests, and now says he is "perplexed" that I seem to have an inflammatory disorder, to be determined, causing strange white markers on the MRI and "inflammation markers" in the blood. I'll be damned if I'll take a third bad drug to counter the second bad drug (the Keppra) which I never would have had to take without the cataclysm brought on by the first bad drug (the Prednisone.) I know some people need these drugs, but they were administered in crazy high dosage to an elderly person. The Prednisone also zoomed my cholesterol sky-high and it had always been normal. I am seeking INFORMATION and FEEDBACK on inflammatory disorders with the Keppra, because suddenly I have medical problems I have never seen!

    post created 10 months ago

  • I take cytomel with synthroid for a total...

    I take cytomel with synthroid for a total thyroidectomy (noncancerous) I had hyperthyroidism. When I take cytomel daily I get inflammation symptoms. ringing ears, puffyface, swelling. I do have type 2 diabetes and take insulin daily too and on high blood pressure medication. I do not sleep for very long at night. I wake up in discomfort.

    post created 10 months ago

  • I take invokana and have been on it for at least...

    I take invokana and have been on it for at least three months, I have suddenly developed knee pain in both knees and have gotten off invokana. I want to know if my knees will get better that I got off the drug. Both knees have the same symptoms pain in the back and front.

    post created 1 year, 12 days ago

  • Started on Wellbutrin one month ago and am having...

    Started on Wellbutrin one month ago and am having such bad inflammation i have joints being pulled out of alignment such as my pelvis. Seeing a holistic chiro and medics massage.

    post created 1 year, 4 months ago

  • Have been taking Miralax for 3 years for chronic...

    Have been taking Miralax for 3 years for chronic constipation. Have developed severe muscle pain. I recently stopped it and pain subsided.

    post created 1 year, 6 months ago

  • Looking for help with inflammation. I suspect...

    Looking for help with inflammation. I suspect that Losartan Potassium may be contributing to the inflammation in my hips and lower back.

    post created 1 year, 6 months ago

  • I'm a young 75 year old , with a 40 year history...

    I'm a young 75 year old , with a 40 year history of antidepressants. Been on Cymbalta for 5 years, have been very happy with it. I have arthritis in back and hips, wrists, knees and in addition to a it's antidepressant effects, it also helps with pain. I'm curious about diet with these two factors. Anyone study this or have experience with gluten-free and/or dairy-free?

    post created 1 year, 6 months ago

  • just had ankle surgery

    just had ankle surgery

    post created 1 year, 7 months ago

  • Goodmorning from an 81 yr old male recently...

    Goodmorning from an 81 yr old male recently suffering from hip and neck muscle inflamation wondering if this could be from my regular small sips of wiskey before food not enough of it to get high

    post created 1 year, 8 months ago

  • I take serax for nerves acyclovir and a calcium...

    I take serax for nerves acyclovir and a calcium beta blocked will this interact with teremic that also has pepper and ginger in it

    question created 1 year, 8 months ago

  • I have been taking Januvia for about 6 weeks now....

    I have been taking Januvia for about 6 weeks now. I had the inflammation prior to taking it but just need to know how this drug is working for others.

    post created 1 year, 8 months ago

  • Everyday I have a headache and my whole body...

    Everyday I have a headache and my whole body feels inflamed. Ihave been taking hiprex for a while now and I wasn't like this before. I have been wondering whether hiprex is the culprit.

    post created 1 year, 8 months ago

  • Hi everyone I have been on atenolol for a high...

    Hi everyone I have been on atenolol for a high pulse rate. I have been on 25mg since June 2015 and within a month i developed carpral tunnel syndrome in both hands. It followed by shoulder impingement and then a torn rotator cuff in my left shoulder which was operatedon in Feb.2016 and is doing physical therapy. I didan MRI for the right shoulder and discovered i also have a tear. I need to get off this medication. It is causing more harm than good. Any thoughts? No one seems to be llistening.

    post created 1 year, 9 months ago

  • Hi everyone I have been on atenolol for a high...

    Hi everyone
    I have been on atenolol for a high pulse rate. I have been on 25mg since June 2015 and within a month i developed carpral tunnel syndrome in both hands. It followed by shoulder impingement and then a torn rotator cuff in my left shoulder which was operatedon in Feb.2016 and is doing physical therapy. I didan MRI for the right shoulder and discovered i also have a tear. I need to get off this medication. It is causing more harm than good. Any thoughts? No one seems to be llistening.

    post created 1 year, 9 months ago

  • Hi! I'm Cindy

    Hi! I'm Cindy

    post created 1 year, 9 months ago

  • I will not take amlodipine besylate 5 mg. ever...

    I will not take amlodipine besylate 5 mg. ever again. I became dizzy in January 2015, L ewas so dizzy in March 2011 I was taken to the ER. No findings. I was prescribed a drug for vertigo but refused to take it. On Oct. 24th 2015 I became incapacitated by vertigo. I observed the pill was different than the last prescription. It was light blue not white. Inside of going to the ER I saw an ENT for the first time. 3 days of audiology testing. Aside from wax in ears, NO FINDINGS. The ENT dr. was very apathetic. He said I had inflammation in the ear and to take steroids. NO WAY. It's been 18 days since my last pill and my head feels less pressure, sinus cavities open, ankles and feet flexible, no deep sock impressions on ankles from swelling. I can navigate stairs without fear. My walking has improved. I was using a stick to walk as vertigo had me walking like a drunken sailor. I was dizzy and fearful to drive for 15 days. I didn't realize 9 manufacturers make generic amlodipine besylate 5 mg. My next step is to get their locations & where they get the ingredients from. China? USA? Where thy market & distribute their drug.

    post created 2 years ago

  • Had a knee injury that was expected to take 6...

    Had a knee injury that was expected to take 6 months to heal...during routine blood work...found out that my thyroid levels were low...so I was put on Synthroid...for the next two years I suffered with both my knees swelling....I assumed that it was from the knee injury and that I was also overusing the other knee. Predisone was my only relief taking 5-10mgc a day. When I mentioned I was feeling tired by PCP increase my Synthroid and the inflammation got worse. I reduced dosage and the inflammation reduced. I increased and the inflammation increased.......so I stopped taking it and the inflammation is gone. I am trying to tamper off the Predisone (which is extremely hard). Just dealing with a lot of fatigue and want to sleep all the time. BTW my thyroid levels are all in normal range now. I'm wondering if I should try a small dose of Armour.

    post created 2 years ago

  • It is really quite simple. FLUORIDE, as in dental...

    It is really quite simple. FLUORIDE, as in dental products, fluoridated water, and tea, is an IRRITANT, that can create caustic hydrogen fluoride in the bladder. It is also a poison that overburdens kidneys and causes or worsens inflammatory diseases. A symptom of kidney toxicity is frequent &/or copious urination. A little over 15% of the population is like me and shouldn’t use fluoride at all, not even tap water to brush our teeth. Almost 15% has kidney disease and should avoid fluoride. Close to 10% with diabetes and another 10% with thyroid disorders should avoid fluoride because of its hormonal effect. That’s 50% of the population off the top who should NOT DRINK FLUORIDATED WATER. It’s a bear. I even have to avoid high water products like lettuce and grapes because I just prefer life without kidney and liver pain, frequent urination, dry gums, and arthritis..... all of which went away after DECADES of pain when I got really strict about fluoride last summer. IMHO: Boards of Health deserve their own circle of hell for their promotion of fluoridation. Brush your teeth with it if you want, but do NOT poison me or my family! See: http://fluoridealert.org/wp-content/uploads/brockovich-iom.april-27.2015.pdf

    post created 2 years ago

  • I was just diagnosed with a macular hole in my...

    I was just diagnosed with a macular hole in my right eye and see a surgeon next week. I am really anxious about the recovery and don't know how I will be able to remain face down! I go to a Zumba class so I guess that is out,

    post created 2 years ago

  • have recently had severe inflammation when taking...

    have recently had severe inflammation when taking b12

    post created 2 years ago

  • Hi all. i am taking 60 mg of duloxetine. About 3...

    Hi all. i am taking 60 mg of duloxetine. About 3 months ago developed being very hot and itching. Last week dose was increased and had high temp fast heartbeat and racing thoughts, also last wk had nettle like rash on chest and neck when dose was increased. have gone back to 60 mg, which i have taken for a long time, rash has gone but now have inflammation in airways burning inside and blood in my motions. Anyone else have anything like this please can you reply a.s.a.p. xx

    post created 2 years ago

  • Any body taking Klonopin or have taken Klonopin...

    Any body taking Klonopin or have taken Klonopin for an extended period of time. Do you have PAWS?

    post created 2 years ago

  • Struggling with Post Acute Withdrawal Syndrome...

    Struggling with Post Acute Withdrawal Syndrome (PAWS) from a prescribed drug.

    post created 2 years ago

  • My name is Milton and I live in Florida (Space...

    My name is Milton and I live in Florida (Space Coast) I take Prednisone for PMR and Avodart for BPH. I believe the combination is causing the pain and stiffness I experiance in my hands especially in the morning. Does anyone have a comment or suggestion?

    post created 2 years ago

  • No one has posted to this group yet? Well I guess...

    No one has posted to this group yet? Well I guess I will start.

    post created 2 years ago

  • Cymbalta is the worst, god-awful drug I've ever...

    Cymbalta is the worst, god-awful drug I've ever taken. It was given to me by an RA guy who described it as an "anti-inflammation" drug which would help with shoulder issue. Bull shit! It about drove me crazy - couldn't sleep, weird dreams, arm and jaw tremors, no appetite, very crabby, headache, every single side effect plus about a dozen more . . . all I can say is he's apparently being paid to push this drug. I quit. Cold turkey. Not going back to this sham doctor. End of story. If you doubt me, go to any on line group discussing Cymbalta. Very, very frightening and maybe, just maybe, an attempt to shut up outspoken, take no s**t women. Seems like women in my age group (over 55) have the most problems . . . DON'T EVER TAKE IT.

    post created 2 years ago