Waldenstrom's macroglobulinaemia: Cancer affects small lymphocytes (white blood cells)
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I have had bilateral Meniere's for at least 20 years. I am 70. Was diagnosed with Waldenstrom's last year. I have gone through 6 months of Treanda and RItuxan infusions, now on a maintenance of once every 2 months RItuxan for 2 years. I would like to hear form others as to how the Meniere's is doing, mine hfas gotten worse with treatment. Glad there is a forum. Thank you.
Got sick in 1999, not diagnosed until 2003 with Waldenstroms. Had Rituxin 3 times and Imbruvica about a year and a half ago. The Dr. gave me too strong of a dose and I almost died. My NEW doctor has me on wait and watch. Diagnosed with ostioporosis several years back. Not on any medicines at this time other than some heart meds for tacicardia. Ache a lot but still going strong at 70. I do a lot of strenuous work on 2.5 acres and running a household and taking care of animals and managing 20 rentals. Push myself a lot. I do get pretty tired. I got kicked off the talk list because the moderator got mad at me 6-8 years ago for saying something funny but still belong to the Icam list which is not too active. I always enjoy talking to others who have the same illness as I. Wish you all well..... Sue
I am in partial remission for Waldenstroms and my dr said I had a mild case of shingles but insists on my taking acyclovir not only now but permanently...seems rather dramatic..is it used like a preventive drug?
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